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Marquita Hernandez's Fundraiser:

5p- minus Cri-Du-Chat

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BENEFITING: 5P SOCIETY

Marquita Hernandez

THE STORY:

5p- minus syndrome
Hello I'm Marquita Hernandez I have a son his name is Venicio Takeo Hernandez, I'm pregnant with my second child she is a baby girl Sareya Aja Hernandez. Both of my children have Cri-Du-Chat which is 5p- minus, which means he is missing a 5th chromosome so is my daughter. So many Disabilities fall under the syndrome it's very unfamiliar where I'm from. My son Venicio was born in Kansas City Mo at Truman Hospital because I'm in Joplin Mo and we have no surgeon's here to give him the care he needs I went into labor at 35 weeks. When Venicio was born he was not breathing they had to revive him. He was breathing a few minutes after then they showed him to me and he was taken to the NICU
at Children's Mercy Hospital. I got to visit him the second day cause I got released from Truman he had a heart murmur but it closed, also a broken clavicle but it healed. I knew at 6 months he had to have surgery called duodenal atresia where the stomach and intestine connected was way to big he wasn't able to eat or poop. So they 2nd day is when he had to have his surgery he came out and was resting, he was on life support for 3 days. Venicio finally woke up and a week after he was working on feeds but he was never able to keep it down. We were in Kansas City for 3 months, Venicio still wasn't keeping his feeds down a couple weeks after he had another surgery because the intestine was starting to swell shut so they had to go in and open it a little bit more so he could keep his feeds down. Venicio was back on life support but it was not very long cause he had a blood transfusion before his surgery. Venicio was in the nicu for a full 5 months my parents are very supportive and I don't think I could have done it without them we were making a lot of trips. My mom had a job then she would have to leave me in Kansas City on the weekends then my husband would come up, Then on Monday my husband would go home and my mom would stay up there all week until the weekend. It took us a lot of money staying $10.00 a night at the Ronald Mc.Donald House food and gas our goal is to raise $1,000.00 dollars. My daughter Sareya Aja Hernandez that is due July,23.2013 she also has the syndrome and Sareya is going to be having her surgery in Springfield MO she will be in the nicu I'm not sure how long I'm guessing about as long as my son Venicio but I hope things go better. But for my son Venicio I'm also making trips to Kansas City MO because he just started having seizures and I'm going back to Kansas City MO July,25.2013 I'm always making trips it would really help me out if you would help me raise money for my babies. Or tips or anything I'm needing a lot of help and support for my babies. Thank you for taking the time to read our story and please support the 5p- syndrome! My facebook name is Marquita Hernandez if you would like to know more.

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