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Melanie Harmon's Fundraiser:

Anything for Emily

Melanie's Photo
Melanie's Photo

BENEFITING: NYU Langone Medical Center

EVENT: 2015 Boston Marathon

EVENT DATE: Apr 20, 2015

Melanie Harmon

THE STORY:

Inspired by my daughter Emily and her medical team at NYU, I will be running 26.2 miles in the 2015 Boston Marathon for Team FACES, Finding a Cure for Epilepsy and Seizures at NYU Langone Medical Center.

At the age of six, Emily was diagnosed with Absence Epilepsy. It was a seemingly benign condition;  most children respond well to medication, and will eventually outgrow it. Unfortunately, Emily was not in that majority, and she, our family, and her medical team at NYU have been working tirelessly to gain control of her seizures.

Under the expert care of Dr. Orrin Devinsky, Emily began a new medication and the modified Ketogenic Diet in June of 2014.

At long last, we are finally seeing the progress for which we have hoped and prayed. Emily's last seen seizure was mid-January 2015. A 48-hour ambulatory EEG showed no seizures, but a few epileptic spikes. She will have repeat EEGs every few months to monitor her progress. In the meantime, each day without a seizure is a gift, and we pray that Emily's seizure- free streak continues. In the best case scenario, she still faces years of blood tests, EEGS, medication and compliance with her very strict diet.

Yet right now, Emily is one of the lucky ones. There are countless adults and children struggling to control their epilepsy, and countless of people around the world who will be diagnosed with Epilepsy each day. FACES' mission, to find a cure for Epilepsy, via cutting-edge research and studies, is our mission too. 

When one is diagnosed with Epilepsy, there is much fear, anxiety and confusion, but there is always hope. FACES embodies this hope…for seizure awareness, control, and eventually, a cure.

Thank you for your love and support, and above all, the gift of hope.

 

 

 

$14,756

MONEY RAISED
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  • Violet Matus

    $189

  • Mom & Pete

    $500

  • Hereford Insurance Company

    $5,000

  • Emily Harmon

    $36

  • Brooke & The Adams Family

    $50

  • The Spier Family

    $100

  • The Israelevitz Family

    $50

  • the Levsky family

    $100

  • The Hardesty family

    $50

  • Micah & Lisa Franklin

    $20

  • The Deneen Family

     

  • thebmilbanks

    $100

  • Anonymous

    $20

  • MJAC

     

  • Callie Klein & Family

    $100

  • The Wilcons

     

  • Guardian Angel Motorsports

    $500

  • The Alpert Family

    $100

  • Ben & Ryan Kaplan

    $100

  • The Rosen Family

     

  • Cory Greenbaum

     

  • The Chastanet Family

    $50

  • Jack Butler

    $20

  • Michelle & Scott Aronson

     

  • Justin Hoolahan

     

  • Barrie & Stephen Silk

    $100

  • Henry Antino

    $50

  • Stephanie & Keith Greenbaum

    $40

  • Dean and Kim

     

  • Henry Thrun

     

  • Barbara and Jim Sadowsky

    $200

  • Tyler Grossman

     

  • Nick Alcock

    $20

  • Lulu Alcock

    $20

  • Emma Alcock

    $20

  • Beth Alcock

    $20

  • Todd Alcock

    $20

  • Olivia Schiavo

    $25

  • Nick Schiavo

    $25

  • Lauren Terricciano

     

  • Matt White

     

  • Jake LaMalva

    $20

  • Paige Lamalva

    $20

  • Kolin Brandeis

     

  • Edward and Resa Sherr

     

  • Curtis Pietropaolo

     

  • Anonymous

    $20

  • Grant Gattuso

     

  • Blake Gattuso

     

  • Gavin Gattuso

     

  • Gerald Capra

    $20

  • Ben Poon

    $20

  • Brendan Doherty

     

  • Nicholas Hatton

     

  • Jill & Jason Evans

    $50

  • Anonymous

    $50

  • Tom McCabe

    $20

  • Colin Hartnett

     

  • Carolyn Lieberman

    $75

  • Tigger Sambrook

    $50

  • Maureen & Agnes Nagle

    $100

  • Nick Zelaya

    $20

  • Sean Cullen

     

  • The Ober Family

     

  • Ammon Family

    $50

  • Eric Silverman

    $100

  • Kim Ho

     

  • Judy Graff

    $100

  • Melvina and Bernie Feldman

    $100

  • Susan, Marc & Elliot Cohen

    $50

  • Lori Donfrancesco

    $40

  • Andrew Harmon & Steven Friedman FACES FINAL FOUR

    $1,000

  • Allison and Scott Marx

    $50

  • Fier family

     

  • The Osetek Family

     

  • Anonymous

    $100

  • John Donovan

    $25

  • The Zides Family

    $100

  • The Antino Family

     

  • Kerry Hill & Family

     

  • Claire Devlin & Family

     

  • Michelle, Jim & Lindsay

     

  • Anonymous

    $100

  • Alford Family

     

  • Karyn and David Kaplan

     

  • The Butler Family

     

  • Shaw Family

    $100

  • anonymous

    $2,500

  • Pearl, 'L. Langley - 'Mendoza.

    $10

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148% Raised of $10,000 Goal

Donor Comments

Pearl,  'L. Langley - 'Mendoza.

Pearl, 'L. Langley - 'Mendoza.

DONATION: $10

3 years ago

anonymous

anonymous

DONATION: $2,500

3 years ago

Shaw Family

Shaw Family

DONATION: $100

3 years ago

The Butler Family

The Butler Family

Congratulations on a job very well done!! 3 years ago

Karyn and David Kaplan

Karyn and David Kaplan

Cold and rain couldn't stop you Melanie! Congratulations on a great Boston Marathon run! 3 years ago

Alford Family

Alford Family

3 years ago

Anonymous

ANONYMOUS

DONATION: $100

3 years ago

Michelle, Jim & Lindsay

Michelle, Jim & Lindsay

3 years ago

Claire Devlin & Family

Claire Devlin & Family

Good luck, Melanie! You are Super Mom - Emily is one lucky girl. 3 years ago

Kerry Hill & Family

Kerry Hill & Family

3 years ago