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Hoops For Harmony's Fundraiser:

Running for Cara.

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Hoops For's Photo
Hoops For's Photo
 

Hoops For Harmony via Crowdrise
October 19, 2010

Great project for raising money for HIBM research. We will fund a cure soon if we keep raising money like this!! Keep it coming....  See more

BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

ORGANIZER: RIchard

EVENT DATE: Oct 31, 2010

Hoops For Harmony

THE STORY:

RIchard Dawson wrote -

When I first met Cara, at the coffee shop in our university, I didn’t ask her why she walked with a cane and a limp.

Hereditary Inclusion Body Myopathy (HIBM) is a rare genetic disorder that strikes healthy adults in their 20s. Muscles progressively weaken, leading to severe disability within 10-15 years. Most patients are eventually confined to a wheelchair. As Cara and I became friends, I noticed that she never left her apartment without a leg brace. I learned about the confusion surrounding HIBM: Cara first knew something was wrong only when she began to unexpectedly fall while dancing. Even then, years of misdiagnosis followed until she was finally told she had HIBM in 2007. I’ve witnessed the progression. By the time classes ended and I moved back to the States, she had adopted a second brace in order to provide her the stability to walk. My reaction was one of confusion and fear- terrified that things would progress, uncertain for my new friend’s future; and to a point, selfishly afraid. It was terrifying to see a vibrant, young person affected by this terrible disorder in the prime of her life. How would I have been able to handle something like this?

Talk about redefining one’s perspective. A childhood of sports, six years in the military, and a recent obsession with Crossfit have made me an extremely fit person. Like most of us, I take this for granted. I’d had a few “painful” moments in my life, or so I thought: a couple knee surgeries; associated experiences with heavy packs, body armor and Iraqi summers; and stress fractures while running a marathon. Perhaps you can imagine how insignificant, even shallow I felt after meeting someone that not only lives with pain in every step, but also still treasures each; knowing that there might be a time when walking is no longer possible. Cara and I traveled together a few times; allowing me a small view of life with HIBM. Here’s what I learned: not all hotels have elevators, always plan taxis ahead of time, and carry extra painkillers. To put it simply, I no longer take every step for granted.

To that end, I’m running for Cara a marathon, something I swore to never do again- to help raise money to fund the cure for HIBM. Perhaps my dear friend, and others with HIBM, can one day run one with us; afterwards we’ll laugh and complain about the “pain” in our feet together; knowing that we’re blessed to have it.
Event: October 31st, Washington DC marathon. Please donate and forward.

DONATE

To This Fundraiser

$400

MONEY RAISED
  • Joe Stern

    $250

  • Adrianne Wonnacott

    $50

  • Bradley Bush

    $100

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Fundraise for this Campaign

The Team: $18,143 TOTAL RAISED SO FAR

Fundraiser Title

RIchard Dawson

Amount Raised

$17,538

 

88% Raised of $20,000 Goal

Fundraiser Title

Hoops For Harmony

Amount Raised

$400

Fundraiser Title

Joshua Nickell

Amount Raised

$150

Fundraiser Title

Vincent Schoeck

Amount Raised

$35

Fundraiser Title

BikeForKam Kam

Amount Raised

$20

Fundraiser Title

imad sayeed

Amount Raised

$0

Donor Comments

Bradley Bush

Bradley Bush

DONATION: $100

xoxo 7 years ago

Adrianne Wonnacott

Adrianne Wonnacott

DONATION: $50

8 years ago

Joe Stern

Joe Stern

DONATION: $250

8 years ago