EVENT DATE: Sep 21, 2013
When we were 13 weeks pregnant with Madison we found out our little girl has Down Syndrome. We immediately began doing research and trying to prepare ourselves to offer her the best life we could. We wanted her, just as she was and we knew that together as a family we would make our way through any challenge. When Madison was born on August 28, 2012, all 7lbs and 13oz, we could not be more in love. She was perfect! Her fuzzy little head and big blue eyes captivated us.
However, we barely had the chance to take in our new baby girl before things started to go downhill and before we knew it she was in a helicopter being flown to Children’s Hospital in D.C. We later found out that Madison was born with three heart defects as well as an intestinal blockage. The months spent in the hospital, as we watched Madison undergo four different surgeries, were very difficult. Madison fought very hard for her life. She is the most determined little girl and she proved she was going to live this life her way.
When the day came to finally take Madison home we were elated! Our son loves his sister and wants to be sure she is always happy, and she adores him and watches him as he plays. Watching them together makes my heart full. Madison has an amazing ability to make people fall in love with her. People have told me how she leaves a lasting impression on anyone she meets. Madison is the perfect addition to our family!
As Madison’s first birthday approaches we talk about our wishes and dreams for her and her future. I wish for her that she has the opportunity to live a long fulfilling life. Thanks to the wonderful doctors and nurses at Children’s our daughter has a fighting chance at a longer life. I hope that she is happy and doesn’t face the cruelness of our society. I want to create a culture where people can see that she is just like any other girl. When people look at our daughter we hope they see Madison and not a little girl with Down Syndrome because her extra chromosome does not define her, it adds to her pizazz. I want to open doors that allow her to dream and to pursue those dreams freely without judgment.
This year we are coming together as Madison’s Marchers in the F.R.I.E.N.D.S. 12th Annual Buddy Walk and joining in their goal of raising awareness and creating opportunities for individuals with Down Syndrome and their families to live their best life possible. F.R.I.E.N.D.S. is working hard to allow our children the opportunity to become recognized as valued members of our community. The group has graciously welcomed and supported our family. We have met so many wonderful families and shared our stories and experiences.
Please join us by spreading the word and making a donation to our team in honor of Madison. The funds raised allow F.R.I.E.N.D.S. to offer scholarships, continue education for teachers in our schools who work with our children, offer medical grants, and bring families together and better the lives of our children. Every dollar helps and any gift of thoughtfulness can make a powerful difference in our children’s lives. Your tax-deductible donation will directly benefit people in our community with Down Syndrome.
Madison’s life is a life worth living. Our daughter had to spend a large part of her first year fighting for her life, please help make the change so that can be the hardest fight she will ever have to face!
Our family sincerely thanks you.