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EB Research Partnership's Fundraiser:

2016 NY Half Marathon

EB Research Partnership's Photo

BENEFITING: EB Research Partnership

EVENT: 2016 United Airlines NYC Half

EVENT DATE: Mar 20, 2016

THE STORY:

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/1009

DONATE

To This Fundraiser

$78,515

MONEY RAISED
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  • Debbie vazzana

    $50

  • Jessica Citrin

    $25

  • Abby & Chad Warden

    $100

  • The McEnaney Family

    $50

  • Angela Salerno

    $50

  • John Hudson

    $100

  • Dan & Debbie Martin

    $100

  • Anonymous

     

  • Employees of Aero Gear

    $135

  • Colleen + Eric Tanjeloff

    $100

  • Aunt Judy and Uncle Tim Graber

    $50

  • Steven Goodman

    $500

  • Luca, Jessica, Dude Law and Vince

    $101

  • Tom & Sue Hamilton

    $35

  • Sawitoski Family

    $25

  • Jocelyn and Scott Koenig

     

  • Jocelyn and Scott Koenig

     

  • Mary Ellen Coyne

    $50

  • Verizon Match

    $500

  • The Siggia Family

    $50

  • Nicole Daragjati

    $50

  • Sean and Matthew McCabe

    $25

  • Lucy Schwarz

    $50

  • Kelly Malice

    $25

  • Katie mahoney

    $50

  • Amy Kubel

    $50

  • The Mann's

    $250

  • The Amato homestead

    $50

  • Cathy

    $50

  • Cathy

    $50

  • Jeffrey Klein

    $100

  • Damen & Justin Wellen

    $50

  • Leonard Stavish

    $10

  • Anonymous

     

  • Rinna and Eric Maletsky

    $100

  • Alison Holden

    $36

  • Anonymous

    $25

  • Eric Reese

     

  • The Katz Family

    $100

  • pamela murphy

    $25

  • Ruby rosen

     

  • Andrew Murphy

    $100

  • Julie Futrovsky Mottler

    $30

  • Beatriz Romero

    $50

  • Katie Serkin Stratton

    $100

  • Jim and Kris Hittler

    $100

  • The Baker Family

    $50

  • The Burrier Family

    $100

  • Judd & Jill Spector

     

  • Matthew Meister and Dafne Sanchez-Aldama

    $100

  • Christine Heenan

    $50

  • Ana M

    $50

  • Herz Family

    $500

  • Gustat Family

     

  • Erika and Nate Jones

    $50

  • Dave Chatoff

     

  • Deborah Grossman

    $100

  • The Galatz Family

    $100

  • The Sperling Family

     

  • Zac, Christine & Hudson Armintrout

    $100

  • Mountford Family

    $50

  • Pierre Désy and Michel Desjardins

    $100

  • Etil meigners

    $118

  • Vanderhoof

    $100

  • Marigold

    $25

  • Queens of Shine

    $355

  • William and Marianne Horowitz

    $100

  • Sally and Michael Rosenberg

    $50

  • Cuadrat/Santisteban

    $50

  • Sabrina Hay

    $50

  • The Duncans

    $50

  • Mardi & Dan Tanzer

    $25

  • The Greensteins

     

  • Joanna(Olszower) Galinski

    $50

  • Jayden Desrochers

    $40

  • Emma Spicer

    $25

  • Jenna and Dan Volpi

    $50

  • Jenna and Dan Volpi

    $50

  • Emma Farrant

    $200

  • Jeff Galaise

    $50

  • Helene Scharf

    $100

  • The Lavellis

    $50

  • Kevin and Susie

    $50

  • Erich stegich

    $250

  • Diana weiss

    $250

  • Sergent Family

    $100

  • The Ferber Family

    $250

  • Claudia Seuss

     

  • January Akselrad

    $100

  • Andrew Thompson

    $25

  • Ed and Jaclyn Petrizzo

    $50

  • Steve Holhubner

    $20

  • Mike and Lexi

    $200

  • Heather and Joe Summers

     

  • Gene Stein

     

  • Michael Romisher

    $25

  • Greenhouse family

    $100

  • The Cannnball Family

     

  • Rob Rosenbaum

     

  • Jeffrey and Allison Kauf

    $100

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Fundraise for this Campaign

The Team: $78,515 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Brooke Michael Kauf

Amount Raised

$19,760

 

132% Raised of $15,000 Goal

Fundraiser Title

Jennifer Kauf

Amount Raised

$8,090

Fundraiser Title

Richard Grossmann

Amount Raised

$5,477

 

91% Raised of $6,000 Goal

Fundraiser Title

Megan Simon

Amount Raised

$3,925

Fundraiser Title

Colby Mulvey

Amount Raised

$3,750

Fundraiser Title

Stephanie Treanor

Amount Raised

$3,100

Fundraiser Title

Erin Karnovsky Schonbraun

Amount Raised

$2,691

Fundraiser Title

Amanda Barclay

Amount Raised

$2,550

Donor Comments

Jeffrey and Allison Kauf

Jeffrey and Allison Kauf

DONATION: $100

2 months ago

Rob Rosenbaum

Rob Rosenbaum

In honor of Charley Kauf 10 months ago

The Cannnball Family

The Cannnball Family

10 months ago

Greenhouse family

Greenhouse family

DONATION: $100

11 months ago

Michael Romisher

Michael Romisher

DONATION: $25

11 months ago

Gene Stein

Gene Stein

11 months ago

Heather and Joe Summers

Heather and Joe Summers

11 months ago

Mike and Lexi

Mike and Lexi

DONATION: $200

11 months ago

Steve Holhubner

Steve Holhubner

DONATION: $20

11 months ago

Ed and Jaclyn Petrizzo

Ed and Jaclyn Petrizzo

DONATION: $50

11 months ago