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Brooke Michael Kauf's Fundraiser:

2016 NY Half Marathon

Brooke  Michael's Photo
Brooke  Michael's Photo
Brooke  Michael's Photo
Brooke  Michael's Photo
Brooke  Michael's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 United Airlines NYC Half

EVENT DATE: Mar 20, 2016

Brooke Michael Kauf

THE STORY:

"Although she be but little, she is fierce." -- SHE is our 4 year old daughter Charley Kauf, and our inspiration to fight to the finish in finding a cure for EB.

Charley was born with Epidermylosis Bullosa (EB), a devastating and life-threatening skin condition that affects children from birth. Children born with EB lack a critical protein that binds their layers of skin together.  Without this protein, even the slightest touch or friction can cause blisters and wounds all over the body—inside and out.

On March 20th, we will be running the United Airlines New York City Half Marathon to support the EB Research Partnership (EBRP), a nonprofit organization that is close to our hearts. Together we can support their mission on finding a cure for EB so one day my daughter, and all those afflicted with EB, will have a chance at living pain-free lives. 

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a devastating and life-threatening skin condition that affects children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

 

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/1009

DONATE

To This Fundraiser

$19,760

MONEY RAISED
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  • Dana & Adam Karlov

    $50

  • Anonymous

     

  • Stephanie, Tony, Avery & Annie Fick

    $100

  • Joe and Sheli Hittler

    $1,000

  • The Peszek Family

     

  • Colin and Claire Gervasio

    $100

  • The Kanter Family

     

  • Senko Family

    $250

  • The Van Pelt Family

    $250

  • A.J. Geisheker

    $100

  • Andrew Friedman

    $150

  • Margaret and Jason Adess

    $500

  • Jessica & Matt Hayes

    $50

  • The Rosen Family

     

  • Paul and Julia Tripodes

    $100

  • Bill Dattalo and Lindsey Glavac

    $100

  • J Lansky

    $100

  • Jennifer Wolfe and Andrew Sprogis

    $100

  • Erin & Caleb

    $100

  • Anonymous

     

  • Drexler Family

    $500

  • Stephanie Reinish

    $25

  • The Palmer Fam

    $200

  • Goldstein family

    $50

  • Andrew Dulaney

     

  • Anonymous

     

  • Butler Chiropractic/ Dr Joseph B Tuzzeo IV

    $100

  • Alex Jacobson

     

  • The Pearl Family

    $180

  • Kiran Khanna

    $50

  • Ratskoff Family

    $50

  • Chuck, Dan, Patrick and Chase Castle

    $300

  • David & Jenn Glatt

    $100

  • Ali and Jeff Goldstein

    $50

  • Frank and Chris Longman

    $100

  • Brian Jones

    $200

  • Randi Landes

     

  • Jimmy Guadagno Tiffany Schoger

    $200

  • The Hemmert

    $100

  • adam and rikki saffro

    $100

  • Josephine Hittler

    $25

  • MARK MITSUKAWA

    $500

  • Nicole Thomas

    $100

  • Anonymous

     

  • Craig Langer

    $250

  • David Litvinov

    $100

  • Donna Lesser

    $100

  • Dan Howley

    $50

  • The Iron Sheik

    $100

  • The Fishmans

    $100

  • Vipulis

     

  • Sean Gowrie

    $50

  • The Von Sameks

    $500

  • Mokhtarian family

    $50

  • Thomas Albert

    $100

  • Mike Lunde

    $15

  • Tom Gowrie

    $50

  • Debbie vazzana

    $50

  • Abby & Chad Warden

    $100

  • Dan & Debbie Martin

    $100

  • Colleen + Eric Tanjeloff

    $100

  • Aunt Judy and Uncle Tim Graber

    $50

  • Steven Goodman

    $500

  • Luca, Jessica, Dude Law and Vince

    $101

  • Tom & Sue Hamilton

    $35

  • Sawitoski Family

    $25

  • The Mann's

    $250

  • Jeffrey Klein

    $100

  • Damen & Justin Wellen

    $50

  • Anonymous

     

  • Rinna and Eric Maletsky

    $100

  • Anonymous

    $25

  • Eric Reese

     

  • The Katz Family

    $100

  • Ruby rosen

     

  • Andrew Murphy

    $100

  • Julie Futrovsky Mottler

    $30

  • Jim and Kris Hittler

    $100

  • Judd & Jill Spector

     

  • Ana M

    $50

  • Herz Family

    $500

  • Gustat Family

     

  • The Galatz Family

    $100

  • The Sperling Family

     

  • Zac, Christine & Hudson Armintrout

    $100

  • Pierre Désy and Michel Desjardins

    $100

  • Vanderhoof

    $100

  • Sally and Michael Rosenberg

    $50

  • William and Marianne Horowitz

    $100

  • Queens of Shine

    $355

  • Joanna(Olszower) Galinski

    $50

  • Sergent Family

    $100

  • The Ferber Family

    $250

  • January Akselrad

    $100

  • Mike and Lexi

    $200

  • Heather and Joe Summers

     

  • Michael Romisher

    $25

  • Greenhouse family

    $100

  • Rob Rosenbaum

     

  • Jeffrey and Allison Kauf

    $100

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132% Raised of $15,000 Goal

Fundraise for this Campaign

The Team: $78,515 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Brooke Michael Kauf

Amount Raised

$19,760

 

132% Raised of $15,000 Goal

Fundraiser Title

Jennifer Kauf

Amount Raised

$8,090

Fundraiser Title

Richard Grossmann

Amount Raised

$5,477

 

91% Raised of $6,000 Goal

Fundraiser Title

Megan Simon

Amount Raised

$3,925

Fundraiser Title

Colby Mulvey

Amount Raised

$3,750

Fundraiser Title

Stephanie Treanor

Amount Raised

$3,100

Fundraiser Title

Erin Karnovsky Schonbraun

Amount Raised

$2,691

Fundraiser Title

Amanda Barclay

Amount Raised

$2,550

Donor Comments

Jeffrey and Allison Kauf

Jeffrey and Allison Kauf

DONATION: $100

1 month ago

Rob Rosenbaum

Rob Rosenbaum

In honor of Charley Kauf 9 months ago

Greenhouse family

Greenhouse family

DONATION: $100

10 months ago

Michael Romisher

Michael Romisher

DONATION: $25

10 months ago

Heather and Joe Summers

Heather and Joe Summers

10 months ago

Mike and Lexi

Mike and Lexi

DONATION: $200

10 months ago

January Akselrad

January Akselrad

DONATION: $100

In Tribute of Amy Mendel's Participation 10 months ago

The Ferber Family

The Ferber Family

DONATION: $250

10 months ago

Sergent Family

Sergent Family

DONATION: $100

#healEB 10 months ago

Joanna(Olszower) Galinski

Joanna(Olszower) Galinski

DONATION: $50

May there be a cure found soon!!! 10 months ago