BENEFITING: NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS
Ectodermal Dysplasias is a Genetic Disorder. People affected by "ED" can suffer certain affects, no hair (anywhere), skin pigmentation, no nails, and much more.
My sister was born with ED and although her condition was not as bad as others she still felt "different". She has little hair on the top of her head, no nails, no toe nails, no eyelashes, no eyebrows, etc. She has overcome a lot growing up she had no self confidence, she is currently 17. She removed herself from school the year after I graduated because children were cruel. It wasnt until this March of 2010 that she purchased her first wig and started to draw her eyebrows on, that little confidence boost has given her a lot, its like shes a different person. Although she was always beautiful, inside and out.. she now feels it!
You take the little things in life for granted until you witness how much that it means to someone else.
The ED foundation collects money to help with Treatment Programs, Family Conferences, they help families cope, and find a care provider to help them with whatever they need. And also for research.
you can call them at (618) 566-2020
there website is http://nfed.org
Please check out their website!
This is an amazing organization. it helps children and adults who suffer from this disorder find the support and help that they need.