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Melanie Harmon's Fundraiser:

FACES at NYU Langone Medical Center NYC Marathon 2015

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Melanie's Photo
Melanie's Photo
Melanie's Photo
Melanie's Photo
Melanie Harmon

THE STORY:

Inspired by my daughter Emily and her medical team at NYU, I was planning to run another 26.2 miles in the 2015 New York City Marathon for Team FACES (Finding a Cure for Epilepsy and Seizures) at NYU Langone Medical Center. Unfortunately, recent ankle surgery will prevent me from running, but our family is still determined to raise funds for Epilepsy and get the world that much closer to a cure. 

At the age of six, Emily was diagnosed with Absence Epilepsy. It was a seemingly benign condition;  most children respond well to medication, and will eventually outgrow it. Unfortunately, Emily was not in that majority, and she, our family, and her medical team at NYU have been working tirelessly to gain control of her seizures.

Under the expert care of Dr. Orrin Devinsky, Emily began a new medication and the modified Ketogenic Diet in June of 2014.

At long last, we are finally seeing the progress for which we have hoped and prayed. Emily's last seen seizure was mid-January 2015. A 48-hour ambulatory EEG showed no seizures, but a few epileptic spikes. She will have repeat EEGs every few months to monitor her progress. In the meantime, each day without a seizure is a gift, and we pray that Emily's seizure- free streak continues. In the best case scenario, she still faces years of blood tests, EEGS, medication and compliance with her very strict diet.

Yet right now, Emily is one of the lucky ones. There are countless adults and children struggling to control their epilepsy, and countless of people around the world who will be diagnosed with Epilepsy each day. FACES' mission, to find a cure for Epilepsy, via cutting-edge research and studies, is our mission too. 

When one is diagnosed with Epilepsy, there is much fear, anxiety and confusion, but there is always hope. FACES embodies this hope…for seizure awareness, control, and eventually, a cure.

Thank you for your love and support, and above all, the gift of hope.

 

 

To learn more about FACES, please click here to watch our video 

$500

MONEY RAISED
  • Diane and Michael Gardener

    $500

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The Team: $67,917 TOTAL RAISED SO FAR

Fundraiser Title

Kevin Merritt

Amount Raised

$13,550

Fundraiser Title

Tim Marshall

Amount Raised

$12,230

 

122% Raised of $10,000 Goal

Fundraiser Title

Rupert Haynes

Amount Raised

$7,500

Fundraiser Title

Lizzy Daly

Amount Raised

$7,245

 

104% Raised of $7,000 Goal

Fundraiser Title

Steven LaDew

Amount Raised

$5,150

 

103% Raised of $5,000 Goal

Fundraiser Title

Chris Reil

Amount Raised

$5,125

 

103% Raised of $5,000 Goal

Fundraiser Title

Richard Shane

Amount Raised

$5,106

 

51% Raised of $10,000 Goal

Fundraiser Title

Anna Miller

Amount Raised

$5,000

 

100% Raised of $5,000 Goal

Donor Comments

Diane and Michael Gardener

Diane and Michael Gardener

DONATION: $500

In honor of Susan and Peter Lewis and Karen and Allen Kaplan from the Levine family. 3 years ago