In the fourth grade I met a girl named Emily Lumley, she was smart, creative and one of the kindest souls. Over the past eleven years we have created a friendship like no other. Emily and myself have become more like sisters, and we have grown close to each others families. Emily's younger brother Daniel was in kindergarten when we met, a cute little boy with bright eyes and a handsome smile. I have had the pleasure to watch Daniel grow into a young man. Today, Daniel is 16, a Junior at Sayville High School, where he has been on the High Honor Roll since middle school. He is passionate about art, loving to paint and draw. Daniel is also an animal lover, he cares for many fish as well as his service dog, Antoinette. Daniel can light up a room and never fails to have me laughing.
On November 4th 2012, I recieved a text message from Emily, Daniel had just suffered from an eleven minute long grand mal seizure while sitting in his kitchen. Emily and her parents, Danny and Lisa, both Registered Nurses were home that morning, and helplessly watched as Daniel seized violently. Daniel was rushed to NSLIJHS Southside hospital and was later transferred to NSLIJHS Cohen Children's Hospital Medical Center. After numerous tests Daniel was diagnosed with occipital lobe epilepsey, a disease without a cause or a cure.
As a young teen this would dramatically change the life he lived. Taking many precautions every day, Daniel has lost most of the freedom a young man looks foward to coming into his teenage years. Daniel can never be left by himself, cannot lock the door in the bathroom and cannot take the driver's learner's permit test. Also, he cannot take part in any contact sports, or play gym with his classmates. For most teenagers this is a very exciting point in life, gaining freedom and being able to drive, epilepsy has taken that from Daniel.
In support of Daniel and the entire Lumley Family, I, Tara Gross, will run along side my best friend, Emily, on March 15th, 2015 in the NYC Half Marathon with teamFACES to find a cure for epilepsy and seizures. I ask that you please help myself and my team raise money to find a cure for Daniel and all others suffering from epilepsy
FACES at NYU Langone Medical Center wrote -
TeamFACES is proud to run in the 2015 NYC Half Marathon among thousands of others as they race on behalf of important, meaningful causes. Our athletes aimed to spread epilepsy awareness and support for the mission of FACES while racing through the streets of New York City on March 15th!
FACES (Finding a Cure for Epilepsy and Seizures) at NYU Langone Medical Center is dedicated to helping people and families living with epilepsy, through research, education, and clinical and community support programs.
Funds raised by each runner will benefit research efforts to improve epilepsy care, educational materials and cost-free seminars, scholarship opportunities, family initiatives, and various events hosted by FACES throughout the year.
To learn more about FACES, please click here to watch our video.