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Amy Ruhf's Fundraiser:

HIKE 4 HOPE

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@Hike4Hope1

Thank you to all who have donated to Hike4Hope!! With your help we have raised over $41,000 for #nathanandbennett & #progeria research!!  See more

BENEFITING: The Progeria Research Foundation, Inc.

EVENT DATE: Jun 20, 2014

Amy Ruhf

THE STORY:

**For offline donations, send a check payable to Progeria Research Foundation to:
Fighting for their Future
Attn: HIKE4HOPE
PO Box 641
Flourtown, PA 19031

Nathan and Bennett are two little boys who are part of my Church family.  Both of them suffer from Progeria, a fatal disease that affects approximately 250 children world-wide.  Progeria is a premature aging disorder that results in many of the typical symptoms of aging and ultimately results in a shortened lifespan. Although they are usually born looking healthy, most children with Progeria begin to display many characteristics of Progeria within the first year of life. Nathan and Bennett are extremely small for their age and suffer from a significant lack of subcutaneous fat, wormian bones in their skull, clubbed fingers, acroosteolysis (reabsorption of the finger tips), stiff joints, muscle weakness, hair loss, developmental delays and delayed teeth eruption. As children get older, they suffer from osteoporosis, generalized atherosclerosis, cardiovascular (heart) disease and stroke. For children with classic Progeria, the average lifespan is 13 years. Because Mandibuloacral Dysplasia Type B is so rare, the life expectancy of Nathan and Bennett is unknown.

The Progeria Research Foundation was founded in 1999 in response to a complete lack of progress being made to help children with Progeria.   When their son Sam was diagnosed in 1998, Drs. Leslie Gordon and Scott Berns were told that there was nothing that could be done and they should take their son home and enjoy whatever time they had with him.  That simply was not acceptable to them, so they founded the Progeria Research Foundation with a mission to discover the cause, treatments and cure for Progeria.  Today, PRF is the only organization in the world solely dedicated to this mission.  Tragically, Sam lost his battle with Progeria on January 10th.  The legacy of hope and inspiration that he left behnid have touched the hearts of many people across the globe.

As I thought and prayed, I felt a calling to not only raise funds for the Progeria Research Foundation but also to DO something that would increase awareness about Progeria and honor those children and families who are affected by it.  It was out of this desire to serve and be used that the idea of HIKE4HOPE was born. In an effort to raise funds and awareness, and to honor the families and children who are affected by Progeria, I have committed to backpack one mile on the Appalachian Trail for every child who has Progeria (250+ miles total). These children may not be able to walk or hike one mile but I can, and I can carry them with me in my thoughts and prayers as I go. I’ve set a fundraising goal of $25,000 and have high hopes that I’ll be able to meet and exceed that goal.  

A Cure is out there, it just hasn’t been found yet.  Join me, and together we can be part of the village that can help to bring these children hope and a future.

Please contact me at hike4hope1@gmail.com if you would like to learn more about my hike, PRF or Nathan and Bennett, Follow me on Twitter at @Hike4Hope1, and please visit my blog page at http://hike4hope1.blogspot.com

 

DONATE

To This Fundraiser

$41,332

MONEY RAISED
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  • Misc. Cash Donations

     

  • Frank Boni

     

  • Dick and Judy McNeal

     

  • Andy and Megan Smith

     

  • Ellen Boucher

     

  • Nancy Traister

     

  • Lisa A. Derr-Taylor

     

  • Carol Deitch

     

  • Claudette Fleischmann

     

  • Susan Buehler

     

  • June First Friday

     

  • James & Stella Yoo

     

  • Jerry Luciani

     

  • Paul Belser

     

  • Carolyn Kelly

     

  • The Lundy Family

     

  • Ryan Ball

     

  • Katherine Larimer

     

  • Megan Graney

     

  • Douglas Ervin

     

  • Rachel Coley

     

  • JOhn Brasch

     

  • Mary Claghorn

     

  • Holly & Rick Stevens

     

  • Leonard Logan

     

  • Lynn Simmons

     

  • Brad McCleary

     

  • Ruth Loftus

     

  • Kim & Ricky Brown

     

  • Peggy Wiles

     

  • Daniel Bosco

     

  • Christina Hughes & Drew Gajan

     

  • William Brams

     

  • Toby Moyer

     

  • Sara & Trey Halkett

     

  • Jean Miksch

     

  • Sage Vega

     

  • Don & Kathy Johnston

     

  • Karri McKenzie

     

  • Connie & Ed Morgenson

     

  • Larry Wiggins

     

  • Sara Van Sant

     

  • Tom Shaner

     

  • Carol Pearce

     

  • Jan Stephens

     

  • Lucy and Bill Kemp

     

  • Angelica Ganser

     

  • Kris Hunnicutt

     

  • David Neff

     

  • Jodi Wolper

     

  • Elizabeth Schoenberg

     

  • Steve Neff

     

  • Isaac Clark

     

  • Sara Hyer

     

  • Jim Staufenberg

     

  • Mike Neff

     

  • Scott Nubbemeyer

     

  • Ann Niggemann

     

  • Sue Seestedt

     

  • Alys Robertson

     

  • Kelly McLaughlin

     

  • Linda Kennedy

     

  • Ron Moritz

     

  • Dave & Tina Goll

     

  • Christine and Robert Kratz

     

  • Dave & Fal Klitsch

     

  • Kristy Sarzynski

     

  • Barbara Epstein

     

  • Stephanie Stapleton

     

  • John Marozzi

     

  • Terese Schneider

     

  • Jason and Julieanne Farabaugh

     

  • Judy McKee

     

  • Carol & Chuck Brumbaugh

     

  • Susan Gardner

     

  • Mary Rodriguez

     

  • Mary Catalino

     

  • Laura DeFlavia

     

  • Nick Paumier

     

  • Avalon Green

     

  • NIcole and Scott Grabus

     

  • Rebecca Teed

     

  • Meghan McCullough

     

  • Dick & Betsy Dresher

     

  • Gary Volpe

     

  • Glenn & Cyndie Rossi

     

  • Diann Doelp

     

  • Debra Klinman & Tom Collins

     

  • Anonymous

     

  • Betty & Betty George

     

  • Bruce & Gloria Furman

     

  • Bob Rodgers

     

  • Harry & Thuong Thi

     

  • Robert & Deborah Enck

     

  • Mike Faust and Family

     

  • Redmond and Christina

     

  • Harmony Church

     

  • Anonymous

     

  • Xavier Tubio

     

  • Steve Fennel

     

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165% Raised of $25,000 Goal

Fundraise for this Campaign

The Team: $41,332 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Amy Ruhf

Amount Raised

$41,332

 

165% Raised of $25,000 Goal

Fundraiser Title

Dana Lavin

Amount Raised

$0

Donor Comments

Steve Fennel

Steve Fennel

2 years ago

Xavier Tubio

Xavier Tubio

3 years ago

Anonymous

ANONYMOUS

For Nathan and Bennett 3 years ago

Harmony Church

Harmony Church

3 years ago

Redmond and Christina

Redmond and Christina

3 years ago

Mike Faust and Family

Mike Faust and Family

3 years ago

Bruce & Gloria Furman

Bruce & Gloria Furman

3 years ago

Robert & Deborah Enck

Robert & Deborah Enck

3 years ago

Harry & Thuong Thi

Harry & Thuong Thi

3 years ago

Bob Rodgers

Bob Rodgers

3 years ago