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136% Raised of $150,000 Goal

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Kleefstra Syndrome Virtual Walk-and-Roll:  September 17-25, 2016 Photo
Kleefstra Syndrome Virtual Walk-and-Roll:  September 17-25, 2016 Photo

The Story

Kleefstra Syndrome Virtual Walk-and-Roll: September 17-25, 2016

 

GeneSpark.org, an international non-profit foundation, is raising money to fund scientific research projects aimed at advancing a drug treatment for Kleefstra syndrome (KS). KS is a rare genetic condition caused by a mutation or deletion of the EHMT1 gene. KS patients have intellectual disabilities, speech impairments and various other neurological and physical abnormalities, including walking difficulties, heart defects, kidney/urological defects, respiratory infections and seizures. There is no treatment today, however, scientists do know enough to begin working towards developing a drug. Funding is the biggest hurdle and, as such, your donation and support can put a treatment within reach.

 

From September 17-25, 2016, GeneSpark.org will host its first annual virtual "Walk-and-Roll". Families affected by Kleefstra Syndrome will walk or roll (wheelchair, stroller or cycle!) their way across a self-designated 5K (3.1 miles) route in their local communities. Proceeds raised will go towards developing a drug to treat KS. Consider a donation on this page or start your own fundraising team by clicking on the "Start Your Fundraiser" button.

 

We accept tax-deductible donations from U.S. taxpayers through our partnership with Charities Aid Foundation America (CAF America), an independent U.S. registered charity (registration number 43-1634280). All donations are receipted by email and are directed to the GeneSpark.org Fund at CAF America.

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Alis Allies

Amount Raised:

$52,775

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Walking in Natalya's footste...

Amount Raised:

$51,888

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Logan's Race for Hope

Amount Raised:

$20,815

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Ethan McIntosh's Light for K...

Amount Raised:

$18,013

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Abby's Answer

Amount Raised:

$10,647

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Hope for Kleefstra

Amount Raised:

$8,780

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Siena's walk around the park

Amount Raised:

$7,903

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Courtney's Campaign for Klee...

Amount Raised:

$7,500

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A Miracle for Austin

Amount Raised:

$5,050

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Ethan's Walk-and-Roll for Kl...

Amount Raised:

$2,405

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Uma esperança para Julia

Amount Raised:

$2,135

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You Walk, I Run

Amount Raised:

$1,900

Team Organizer's Photo

Hope for Hannah

Amount Raised:

$1,775

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Uma esperança para Maitê

Amount Raised:

$1,753

Team Organizer's Photo

Hope for Parker

Amount Raised:

$1,725