EVENT: March for Maddie
EVENT DATE: May 06, 2017
My niece, Maddie Schramm, passed away at the young age of 2 1/2 years old. Our family and friends were blessed to have her in our lives. She was born with a congenital abdominal wall defect called an Omphalocele as well as a Diaphragmatic Hernia which led to a life threatening condition called Pediatric Pulmonary Hypertension. After birth, Maddie spent several months in the NICU. She underwent three major surgeries and countless procedures, but at 6.5 months old she defied the odds and came home.
Despite spending her life attached to a ventilator, she was the happiest little girl you could ever meet. She learned all the normal things kids do - she crawled, talked, sang, walked, laughed and danced.
My brother, Jeff and sister-in-law, Malia are amazing. I am convinced that Maddie was here for as long as she was because of them! Malia's research and their persistence to find the best treatment for Maddie was unbelievable. And for them to continue to want to help others like Maddie is so inspiring.
Please help support Maddie’s Big Heart Foundation. The mission is to raise money to help fund this research as well as programs that support children and families that live with it.
I hope you will register to walk with us or make a donation. Thanks