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Ava and Adrianna's Fundraiser:

Ava & Adrianna's Walk for Hope

Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
Ava  and's Photo
 

Amazing start
July 07, 2016

Thank you so much to our earliest supporters!!! You've kicked off our campaign with a bang!!! The girls are so excited.  See more
Ava and Adrianna

THE STORY:

2016 ITL Walk

Welcome to Ava & Adrianna's page for the Into the Light Walk for Epilepsy! Lisa and I want to thank all our friends and family for their continued support. It is our goal to make this year’s Walk our most successful yet! We are blessed to have eachother to lean on through the tough times and cheer eachother through the milestones.   

Ava Grace's Story:

Ava in the Summer of 2013 was diagnoised with Grand Mal Seizures. You don't just "catch" epilepsy it's something that you are predispositined to have.  It's what triggers it and what trauma or incident brings it on.  Ava's was brought on by a fall on her skate board with no helmet. Regardless if it was the fall or not it was going to happen eventually.   It took two years to find the right doctors and medication to get Ava to come back to life.  When she started this journey she fell into a deep dark hole. The coctail of medication was just not right.  She hated life, school and refused to "accept" she had Epilespy.  The EFMNY really guided us.  They have been an amazing resource and support.  They have without hesitation returned EVERY call no matter what it was about. Through them we found our amazing doctor Dr. Judith Bluvstein at New York University Epilepsy Center. She see's Ava as a whole child. With her finding the right medication and the help of family, friends and Ava's wonderful teacher, Mrs. Beebe she's grown and has accepted herself and began to live again.  She has recently shared her story with her peers and even has become an little advocate and a resource for others. She loves to horses and riding, creating Art and making goofy videos with friends.  I am so proud of the little lady she is becoming and so excited to see how she continues to fight for a cure and spreads awareness.

Adrianna's Story:

Adrianna's journey started at 11 months old. As a new mother I had the horrific experience of walking into my daughter’s room and found her seizing in her crib, something I wouldn't wish upon my worst enemy. Due to her age her neurologists did not diagnose her because her brain was not fully grown and the activity was in only a small part of the frontal lobe. Adrianna was basically mute until she was two. There was no goo-goo-ga-ga in our house and her fine and gross motor skills were also affected. She has had OT, PT, and speech services ever since to help in her development. She had been on medication until she was two only experiencing gazing spells and rapid eye movement episodes during that year. She had been seizure free until her third birthday and weaned off of the medication over the course of that year. Her team at Stonybrook felt that she had out grown her seizures now that her brain had fully developed. However two months after her third birthday I received a call from her daycare that she had been acting "off" and was asked to come get her. During my typical 12 min car ride to the facility I received another call that she had a seizure and an ambulance was on its way. January 21, 2016 Adrianna was clinically diagnosed with Epilepsy and her EEG showed activity in all parts of her brain. She continues to receive services and has come such a long way. I am not sure what the future holds for her but I will do everything and anything I need to help her fight. She is a smart, sassy little diva who is meant to do big things! Watching her over come every hurdle in her way has taught me the true meaning of strength. Through the support of family and friends spanning from New York/New Jersey to Florida she can do anything her heart desires.

 

DATE: SUNDAY, SEPTEMBER 25th    

CHECK-IN BEGINS: 9:00 AM

WELCOME & RECOGNITIONS: 10:30 AM

WALK: 11:00 AM

WHERE:

The historic South Street Seaport is where the Walk check-in takes place. 

CHECK-IN & EVENT DETAILS

LOCATION:

Check-in is located at the Fulton and Water Street entrance to the Seaport. Although it is not required, please bring a copy of your registration confirmation E-mail. The names of all registered Team members and individual walkers will be provided to our check-in staff. If your name has not been pre-registered, you will be directed to on-site registration.

WALK ROUTE:

The route is approximately up to 5k along the East River on South Street & Battery Park. There are several resting paces along the way. Walkers are free to stop and turn around at any point. The EFMNY will provide appropriate personnel and signage along the entire route.                           

ENTERTAINMENT:

DJ, face painting, and more! Fresh water is available.

SPONSORS:

For more information on how to become a Sponsor or to donate products, please contact charper@efmny.org. To learn more about our Sponsors, check out the sponsor tab.

AFTER THE WALK:                         

Make a day of it in Lower Manhattan, and enjoy yourself! Area maps will be available, and the Coupon that you are given as you arrive at the Walk will give you vendor discounts.

MORE QUESTIONS:  Check out the FAQ tab.

For more information on the Epilepsy Foundation of Metropolitan New York, please visit EFMNY.ORG, and be sure to check out our community blog, EpilepsyNYC.com!

DONATE

To This Fundraiser

$7,755

MONEY RAISED
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  • Nana

    $50

  • Noah and Paige Felice

    $10

  • Johnson family

    $100

  • Vicki Arthurs

    $25

  • The Harris Family

    $50

  • Aunt Sammy & Uncle Eric

    $25

  • Michelle Cooney

    $25

  • Casa Comstock

     

  • Colin and Marcy Tooker

    $25

  • Kristen & JohnPaul Duran

    $25

  • Amy Chasan

    $36

  • Nikki Dougherty

    $100

  • Danielle D'Amico

    $25

  • Jen and Vinny Funaro

    $50

  • Deborah Giusto

    $25

  • Jack and Cathy Kelly

    $25

  • John Reese

    $100

  • Bill Malone

    $50

  • Babcie and Pop

    $50

  • Diane Goehring

    $20

  • Anonymous

     

  • Nancy cameron

     

  • Amandola Family

    $50

  • Anonymous

     

  • Meghan matera

    $50

  • Chris Crimi

    $100

  • Miss. Tracey

    $10

  • FAVORITE CUZ LAUREN & CHICKPEA

    $50

  • Gerie & Mike LaMancusa

    $25

  • Hatzidakis Family

     

  • Anonymous

    $20

  • Danny,Nicole,Devin & Jordan

    $50

  • Edythe and Jose

     

  • GRANDPA & GRANDMA BUTTERMARK

    $100

  • Aunt Maureen

    $50

  • Alyssa DeVito

    $25

  • Energywise Inc

    $50

  • Jeanette Korkuc

     

  • Scarlett and John

    $100

  • Krystal Calvano

    $25

  • NANCY CAFFREY-BOZZA

    $50

  • Lisa Usher

    $25

  • Joseph Votta

    $20

  • Vivian Janeira

    $25

  • Amandola Cousins

     

  • Doreen Harmon

    $50

  • Aunt Jen and Ubcle Felix

    $25

  • Smith Family

    $50

  • Mike and Tara Cruz

    $25

  • Diane Mark

    $20

  • Edison

    $40

  • Julie Maiella Napolitano

    $30

  • Gerard Ruiz

    $50

  • Maria Dayton

    $25

  • Nicholas McBride

    $10

  • Evan McBride

    $20

  • Kimberly & Mikel McBride

    $50

  • Babcie and Pop

    $50

  • Maura and Kenny

    $25

  • Fran Labella

    $25

  • Mario

    $25

  • Frances Pellerito

    $374

  • Marie Gandini

    $25

  • Debbie Sudmann

    $25

  • Christina Cubano

    $25

  • LUCY MAIELLA

    $25

  • Morgan O'BRIEN

    $35

  • Gina Monteforte

    $25

  • Edison Munizaga

    $25

  • Jodi Scarlatos

    $25

  • Jessica Metzler

    $40

  • Sandra Verity

    $25

  • Emanuel Raffaele

    $50

  • Esmee and Ivan

    $25

  • Ryan Kawall

     

  • Ann Marie Budris

    $200

  • Charlie LaBella

    $200

  • Adrianna Shirt Sales

    $310

  • Ava's Shirt Sale

    $189

  • Fran,Bobby,Cortney,Faith

    $100

  • Brian Foster and Family

    $50

  • Philip Amandola sr

    $50

  • Just Nana

    $300

  • Stephanie Anastasia

    $10

  • Dad

    $10

  • Casa Comstock

    $25

  • Joseph Amandola Sr

    $25

  • Ralphy, Alysha, and Maxwell

    $131

  • Neal & Nicole Chakmakian

    $25

  • Newman Family

    $20

  • Papa bear Amandola

    $300

  • Mr. & Mrs. Worontsoff

    $20

  • Laura Skowronski-Botti

    $22

  • Cirigliano Agency

    $200

  • Ali Gangemella

    $25

  • Jace mendivel

    $10

  • Aunt Pat & Uncle Robert

    $50

  • Christine Murphy

    $50

  • Joan & Seth Bykofsky

     

  • Sandy DeMasi and Warren Levine

    $15

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155% Raised of $5,000 Goal

The Team: $7,755 TOTAL RAISED SO FAR

Donor Comments

Sandy DeMasi and Warren Levine

Sandy DeMasi and Warren Levine

DONATION: $15

Love you Ava 1 year ago

Joan & Seth Bykofsky

Joan & Seth Bykofsky

1 year ago

Christine Murphy

Christine Murphy

DONATION: $50

In support of Ava and Adrianna 1 year ago

Aunt Pat & Uncle Robert

Aunt Pat & Uncle Robert

DONATION: $50

1 year ago

Jace mendivel

Jace mendivel

DONATION: $10

1 year ago

Ali Gangemella

Ali Gangemella

DONATION: $25

You got this girls! ð 1 year ago

Cirigliano Agency

Cirigliano Agency

DONATION: $200

1 year ago

Laura Skowronski-Botti

Laura Skowronski-Botti

DONATION: $22

1 year ago

Mr. & Mrs. Worontsoff

Mr. & Mrs. Worontsoff

DONATION: $20

1 year ago

Papa bear Amandola

Papa bear Amandola

DONATION: $300

To my Baby girl Ava Love you Always and forever 1 year ago