BENEFITING: Cure JM Foundation
Morgan has Juvenile Myositis and has spent hundreds of days in the hospital. She finally opens up and tells what it is like to be a patient -- this video straight from the heart of a child is something everyone should see.
Morgan has suffered so much due to Juvenile Myositis. After three and a half years, she is still taking 21 pills a day and getting two infusions a month at the hospital. She also has to get a shot every Sunday of a chemo drug. While all of these treatments are helping, they also have their own side effects.
That is why fifteen-year-old Morgan is raising money to fund reserach into better treatments and a cure.
Juvenile Myositis (JM) is an incurable, life-threatening disease. JM can affect virtually any system of the body (heart, lungs, skin, muscles, etc.). JM often causes a wide range of medical complications. It can be treatable, but oftentimes the treatments are worse than the disease itself.
Cure JM Foundation is the only organzation soley dedicated to Juvenile Myositis research and education and is the largest private funder of Juvenile Myositis research. Cure JM's goal is to never, ever let another child suffer with Juvenile Myositis. With your help, we believe it's a goal that's well within our reach.
Please help us find a cure so that no other child will have to suffer from Juvenile Myositis.
Juvenile Myositis By the Numbers for Morgan
55 The Number of days of school missed so far
19 The number of pills she takes each day
2 The number of all-day infusions she gets by IV each month (Sometimes 3)
1 The number of chemotherapy injections she gets each week
27 The number of days she has spent in the hospital in the last year
5 The number of spinal taps she has had to reliev the pressure on her optic nerve
250+ The number of vials of blood she has had drawn in the last two years to monitor her condition
$310 Average monthly cost of outpatient prescriptions WITH insurance