EVENT DATE: Mar 20, 2016
DEADLINE TO GIVE: Apr 20, 2016
FUNDRAISER SET UP DEADLINE: Feb 17, 2016
The Children's Tumor Foundation's NF Endurance Team is running the 2016 United Airlines NYC Half to end NF through research.
Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.
NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution.
The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.
Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.
There is currently no effective treatments nor a cure, but you can help! Here's how you can support our team today:
- You can click on the DONATE button to contribute what you can on behalf of one of NF Endurance team members.
- You can REGISTER to join the team yourself and help us raise the much-needed funds and spread the word about this cause.
- You can volunteer your time during race week and on race day to welcome, support and encourage our runners.
Please email us at firstname.lastname@example.org with any questions!