In 2014, HikeMF founder, Julie Rittenburg Libon, was diagnosed with Myelofibrosis. Myelofibrosis(MF) is a rare bone marrow cancer. It is one of a related group of blood cancers known as "myeloproliferative neoplasms (MPNs)” in which bone marrow cells that produce the blood cells develop and function abnormally.
There is no cure!
MF affects between 16,000 -18,000 people in the United States. According to several studies, the median life expectancy is 5-7 years from diagnosis.
MF can occur at any age!
After extensive research, we quickly learned that MF is a rare disease with few research dollars. Founder Julie Rittenburg Libon and co-founder Lori Rittenburg Small decided to become proactive and form HikeMF. Together, with their families, they organize an annual hike to raise funds to advance Myelofibrosis research, with the hope that a cure will be found for this progressive disease.
Together we can make a difference!
There are many inspirational people living with Myelofibrosis. Some are trailblazers who have entered a drug trial with the hope that it will be the cure or treatment desperately needed, some are out of hope and saying their goodbyes and some are living their lives, with few symptoms. In memory and in honor of all those affected by Myelofibrosis, we at HikeMF will continue hiking until a cure is found.
With Research There Is Hope!
HikeMF will once again support the important work of the MPN Research Foundation(MPNRF). The MPNRF has been involved in every MPN advancement, including Myelofibrosis. Each donation made through HikeMF for the benefit of the MPNRF will go towards the research of George M. Church PhD, Harvard University. mpnresearchfoundation.org/2015-George-Church.
Here is my story.
I was diagnosed with Myelofibrosis in August of 2014. I was lost for awhile trying to learn what my life would be like dealing with this disease. I was searching for answers when I came upon Julie's Fundraiser, Hike MF. I was so happy to see someone trying to raise funds to find a cure. We started emailing over the last year and have helped each other deal with the unknown that faces both of us in the future. We have not met yet but hope to this May.
Please help us raise funds to find a cure. Thank you. Nancy Claytor