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Nancy E Claytor's Fundraiser:

Nancy E Claytor - Hike MF 2016

BENEFITING: MPN Research Foundation

EVENT: HikeMF 2016

EVENT DATE: May 21, 2016

Nancy E Claytor

THE STORY:

 

Julie wrote,

In 2014, HikeMF founder, Julie Rittenburg Libon, was diagnosed with Myelofibrosis. Myelofibrosis(MF) is a rare bone marrow cancer. It is one of a related group of blood cancers known as "myeloproliferative neoplasms (MPNs)” in which bone marrow cells that produce the blood cells develop and function abnormally. 

There is no cure!

MF affects between 16,000 -18,000 people in the United States. According to several studies, the median life expectancy is 5-7 years from diagnosis.

MF can occur at any age!

After extensive research, we quickly learned that MF is a rare disease with few research dollars. Founder Julie Rittenburg Libon and co-founder Lori Rittenburg Small decided to become proactive and form HikeMF. Together, with their families, they organize an annual hike to raise funds to advance Myelofibrosis research, with the hope that a cure will be found for this progressive disease.

Together we can make a difference!

There are  many inspirational people living with Myelofibrosis. Some are trailblazers who have entered a drug trial with the hope that it will be the cure or treatment desperately needed, some are out of hope and saying their goodbyes and some are living their lives, with few symptoms. In memory and in honor of all those affected by Myelofibrosis, we at HikeMF will continue hiking until a cure is found.

 

With Research There Is Hope!

 

HikeMF will once again support the important work of the MPN Research Foundation(MPNRF). The MPNRF has been involved in every MPN advancement, including Myelofibrosis. Each donation made through HikeMF for the benefit of the MPNRF will go towards the research of George M. Church PhD, Harvard University. mpnresearchfoundation.org/2015-George-Church. 

Here is my story.

 I was diagnosed with Myelofibrosis in August of 2014.  I was lost for awhile trying to learn what my life would be like dealing with this disease.  I was searching for answers  when I came upon Julie's Fundraiser, Hike MF.  I was so happy to see someone trying to raise funds to find a cure.  We started emailing over the last year and have helped each other deal with the unknown that faces both of us in the future.   We have not met yet but hope to this May.

Please help us raise funds to find a cure.  Thank you. Nancy Claytor

 

REGISTER

DONATE

To This Fundraiser

$2,265

MONEY RAISED
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  • Anonymous

    $100

  • Anonymous

    $100

  • Bill & Bryan Evans

    $100

  • Sally Caltrider

    $100

  • Gary & Alan Matzkin

    $100

  • David and Jenny Buckley

    $100

  • Kevin Hiler

    $100

  • The Stoehrer Family

    $100

  • Scott Richardson

     

  • Anonymous

    $25

  • Kim, Nate and Anna

     

  • Bob and Eileen Leyland

    $100

  • Michael and Kristen Hoffman

    $100

  • Jay and Jill

    $100

  • Richard Voreis

    $20

  • Ben and Susan Wenegar

    $25

  • Earl & Donna Kisling

    $100

  • Mike and Gail Glenn

    $100

  • Dean Andersen

    $200

  • Alisa, Bryan, Aliyah, Cohen, Caden and Avalyn

    $100

  • Mike and Delle Moyer

    $50

  • Deborah and Bob

    $20

  • Deb and Jim

    $100

  • NJ Cousin!

     

  • Brenda Claytor

    $50

  • Kathy Cloos

    $25

  • Pat and Kevin

    $100

  • Suzanne Strausser

    $50

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151% Raised of $1,500 Goal

The Team: $2,265 TOTAL RAISED SO FAR

Donor Comments

Suzanne Strausser

Suzanne Strausser

DONATION: $50

2 years ago

Pat and Kevin

Pat and Kevin

DONATION: $100

2 years ago

Kathy Cloos

Kathy Cloos

DONATION: $25

Have a great walk! 2 years ago

Brenda Claytor

Brenda Claytor

DONATION: $50

2 years ago

NJ Cousin!

NJ Cousin!

2 years ago

Deb and Jim

Deb and Jim

DONATION: $100

2 years ago

Deborah and Bob

Deborah and Bob

DONATION: $20

2 years ago

Mike and Delle Moyer

Mike and Delle Moyer

DONATION: $50

2 years ago

Alisa, Bryan, Aliyah, Cohen, Caden and Avalyn

Alisa, Bryan, Aliyah, Cohen, Caden and Avalyn

DONATION: $100

We love you Mom/Grandma!! 2 years ago

Dean Andersen

Dean Andersen

DONATION: $200

Great cause! 2 years ago