BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS
ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS
EVENT: Boston Marathon 2014
EVENT DATE: Apr 21, 2014
I am running the 2014 Boston Marathon to help raise money to find a cure for Rett Syndrome. I am fundraising for this cause because I want to do everything that I possibly can to help my student and many others with Rett Syndrome.
Haylei is six years old and she is the sweetest, smartest, and most beautiful girl. She is also the best teacher I have ever had in my life. Before meeting her, I had never heard of the term "Rett Syndrome". Haylei has taught me so much and she forces me to think outside of the box at all times.
On April 21st, I will be running the 118th Boston Marathon for Haylei and others with Rett Syndrome. Please remember that all donations are tax deductible. You can make your payment online or mail a check to me @ 7 Frank Street, Wakefield, MA 01880. Please make your check payable to the Rett Syndrome Association of Massachusetts.
Thank you very much for your support!!
RETT SYNDROME ASSN OF MASSACHUSETTS wrote -
Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!
Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.
Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.