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Ryan & Erica Robertson's Fundraiser:

Team Rett Boston Marathon 2014

Ryan & Erica's Photo
Ryan & Erica's Photo
Ryan & Erica Robertson

THE STORY:

Family and Friends:

You are all very important to me and I appreciate you taking the time to consider donating to this very special cause.  Most of you know that in 2009 our lives were turned upside down when our daughter Avery was diagnosed with Rett syndrome.

While Erica has fully immersed herself with all things Rett (Program Coordinator at Katie's Clinic for Rett syndrome at Children's Hospital Oakland), I have been less involved-at least publicly.  Well, not anymore!

I am joining Erica in running the Boston Marathon to raise money and awareness.  I accompanied Erica this past year and it was quite an experience as you might imagine.  I have already begun my training and Avery is my motivation.

She is such a special girl.  Although her skills are very limited, she is a sponge and she gets it.  It might sound a little corny but I hope to one day be able to "squeeze" that sponge.

There is hope!  Research is advancing very quickly, clinical trials are happening now -- please help me reach (and hopefully surpass) my goal of $5000. 

Thanks,

Red

RETT SYNDROME ASSN OF MASSACHUSETTS wrote -

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

$13,120

MONEY RAISED
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  • Chase Renton

    $50

  • Candace Graham

    $50

  • Justin Bishop

    $100

  • Avery Robertson

    $100

  • Robert Perrett

    $100

  • Adam and Dana Gold

    $100

  • Michael Raysor

    $100

  • The Friedman Family

    $36

  • Chris Corvi

    $25

  • Kyle & Yvette Nichols

    $250

  • Lee Swomley

    $100

  • Evan

    $1,000

  • Rob and Kathryn Childers

    $100

  • Emily & Andrew

    $100

  • Laura and Matt Hegarty

    $100

  • Steve and Tish

    $500

  • Jim Vorhis

     

  • KC and Sid

    $200

  • Tim Harwood

    $100

  • KC, Barry, Rhys, Viv

    $100

  • John and Laura Gunderson

    $200

  • Mrs. Carol Smith

    $75

  • Weenig Family

    $100

  • Ryan & Trina Hoogendyk

    $100

  • Will, Shirley, Chloe, and Ben Harwood

    $50

  • Justin & Amanda Chipman

     

  • Matt & Suzanne Kroger

    $100

  • Sean Ewing

    $100

  • Jen and Ryan Atkinson

    $100

  • Connor Buestad

    $50

  • reena

    $44

  • Jeremy & Katie

    $100

  • mary and steven

     

  • drew

    $500

  • Tatem and Morgan

     

  • Gus and Natalie Panagotacos

    $100

  • Matt, Zhanna, Rachael & Jacob

    $150

  • Anonymous

    $100

  • Kizer Family

    $50

  • Jana and Jim Stevens

    $100

  • Debbie and Dan Lee

    $50

  • Pete and Val

    $500

  • Anne & Jim Krysiak

    $100

  • Eden and Ethan Marsh

    $75

  • Roni and Paul Melmed

    $105

  • THE Wang Family

    $200

  • Adrian Reinhard

    $100

  • Val & Dave

    $25

  • The Hadley Family

    $50

  • Dean & Alana Jacobson

    $100

  • The Amenta Family

    $50

  • The Barbano Family

    $100

  • Greg, Laura, and Meredith Lewis

    $100

  • Cammy Can

    $15

  • Cathy Quides

    $50

  • Kristina & Chris Smith

    $2,050

  • Diane Dunn & Vicki Lewis

     

  • Outrunning Rett Virtual 5K!

    $825

  • John Kofoed

    $100

  • The Champion Family

    $100

  • Anonymous

    $100

  • Quinn Devine

    $100

  • Doug Dugan

    $50

  • Jordan & Kamryn Mcneil

    $50

  • Gold Family

    $100

  • Aunt Alice T

    $100

  • Stacy and Dan Martin

    $50

  • Anne & Paul Costello

    $50

  • Dave, Erin, Ryan & Evan Bessey

    $325

  • Jenn Cain

    $50

  • Frances Carlisle

    $100

  • Gamma Karen

    $100

  • Boe and Sheri Cunningham

    $100

  • Craig & Jaime Roder

    $200

  • Zack Roder

    $20

  • Pam Thomas

    $50

  • The Stevens Family

    $100

  • Greg and Kelly

    $150

  • Jeff and Lisa

    $200

  • Gabriela Cellini

    $50

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131% Raised of $10,000 Goal

Fundraise for this Campaign

The Boston Marathon on Crowdrise John Hancock on Facebook John Hancock on Twitter

The Team: $185,579 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Anthony Rochte

Amount Raised

$20,215

Fundraiser Title

Daniel Warner

Amount Raised

$18,209

 

121% Raised of $15,000 Goal

Fundraiser Title

Dominic Giegerich

Amount Raised

$14,363

 

103% Raised of $14,000 Goal

Fundraiser Title

Ryan & Erica Robertson

Amount Raised

$13,120

 

131% Raised of $10,000 Goal

Fundraiser Title

Jenn Seney

Amount Raised

$12,587

 

84% Raised of $15,000 Goal

Fundraiser Title

Dickie Nee

Amount Raised

$11,865

 

237% Raised of $5,000 Goal

Fundraiser Title

Zenaida Jimenez

Amount Raised

$9,283

Fundraiser Title

Krissy Nowell

Amount Raised

$8,889

Donor Comments

Gabriela Cellini

Gabriela Cellini

DONATION: $50

3 years ago

Jeff and Lisa

Jeff and Lisa

DONATION: $200

3 years ago

Greg and Kelly

Greg and Kelly

DONATION: $150

Good luck E and Red, hoping you both do great and achieve your goals. 3 years ago

The Stevens Family

The Stevens Family

DONATION: $100

Good luck! Go Red and Erica! 3 years ago

Pam Thomas

Pam Thomas

DONATION: $50

3 years ago

Zack Roder

Zack Roder

DONATION: $20

Good luck, I hope you win the race! 3 years ago

Craig & Jaime Roder

Craig & Jaime Roder

DONATION: $200

Go Red and E! So proud of you guys & love your kids. 3 years ago

Boe and Sheri Cunningham

Boe and Sheri Cunningham

DONATION: $100

So proud of you guys! Thanks for all you do for RS!! 3 years ago

Gamma Karen

Gamma Karen

DONATION: $100

The best of luck to Erica and Red on running the Boston Marathon for the MOST worthy cause I know of, for the best little girl, Avery. I love all of you, I'll be thinking of you and praying for you. Praying this will be the year they find a cure for Rett. 3 years ago

Frances Carlisle

Frances Carlisle

DONATION: $100

3 years ago