BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS
ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS
EVENT: 2017 Boston Marathon
EVENT DATE: Apr 17, 2017
On April 17th, I will be running the 121st Boston Marathon in support of the Rett Syndrome Association of Massachusetts. This will be my fifth year running with Team Rett. I run to honor my former student, Haylei, and the many others who struggle with Rett Syndrome. Please support me in my cause.
Please remember that all donations are tax deductible. You can make your payment online or mail a check to me @ 7 Frank Street, Wakefield, MA 01880. Please make your check payable to the Rett Syndrome Association of Massachusetts. Thanks for any help that you can give!
History of Rett Syndrome: Rett Syndrome was first recognized by Andreas Rett in 1966. He worked with special needs children, believing that they deserved the best quality of life possible. This quote by Dr. Rett pretty much sums up my thoughts, "These three words summarize best our task: To live, to love, and to learn. We are aware of the fact that many mysteries of this syndrome still remain undisclosed, and therefore, for the time being, we have no option but to live with it. However, the children with their very special ways give us enough impulse to share their lives. It is a further mystery of this syndrome that the affected children render it easy for us to love them. A dominating factor in the care of such children is that they understand us and we understand them. Their appearance and the sparkle in their eyes make it easy to love them. Daily care for them and working with them gives us grownups strength, enabling us to learn the special treatment required, thus furthering our own development. To live with them, to love them and to learn from them are the rudimentary principles of our work."
RETT SYNDROME ASSN OF MASSACHUSETTS wrote -
Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!
Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.
Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome! For more information about RSAM, please visit our website at www.rettsyndromemass.org