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Jenn Seney's Fundraiser:

Rett Syndrome Association of Massachusetts Boston 2017

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Jenn Seney

THE STORY:

Dear Friends,

I am writing to ask that you consider supporting me and Team Rett in running the 2017 Boston Marathon.

Since 2012 Matt and I, with all of your help, have been avid supporters of Rett Syndrome research on behalf of Abby and all the other Rett Angels out there.  Our work continues … 

Funds raised will go directly to the Rett Syndrome Association of Massachusetts, a group which Matt and I have been involved with for many years. 

Funds from the 2016 Marathon Efforts went to support the following two projects: 

 - Timothy Hammond, Ph.D., at Boston Children’s Hospital / Harvard Medical School.  Research on the understanding the role that MeCP2 plays in a population of brain cells known as microglia. This is an exciting new area within the field, and Timothy’s work has added significance in that he is studying how IGF-1 impacts the ability of normal and mutant microglia to support the survival and function of neurons in mouse models of Rett Syndrome.

 - Michela Fagiolini, Ph.D., at Boston Children’s Hospital / Harvard Medical School.  Focused on strategies to compensate for reduced neurotransmitter levels present in the central nervous system of Rett Syndrome patients by stimulating two specific (and related) receptors present on neurons.  In the study, she will be testing the ability of a number of both these receptor modulators to delay and treat cortical neuron regression in mouse models of Rett syndrome.  The ultimate goal is to develop new drug candidates that target these receptors for clinical use.

Previous funds raised via the marathon team has gone to support the IGF-1 clinical trial at Children’s Hospital Boston, a trial which Abby sought enrollment, as well as research in world-class laboratories at MIT and Harvard. 

It has yet to be determined to what research projects funds from the 2017 marathon will be dedicated, but Matt and I will be involved in that process. 

Crowdrise charges a nominal administrative fee to process donations.  If you would like to avoid this, please feel free to send a check direct to me, at 45 Cider Mill Rd, Sudbury, MA 01776, made out to Rett Syndrome Association of Massachusetts (or "RSAM" for short).  RSAM is a 501(c)(3) charitable organization, and your donation is tax deductible.  

In closing, please read the following comments made by Dr. Rett years ago to parents and professionals dealing with Rett Syndrome:

"These three words summarize best our task: to live, to love, and to learn.  We are aware of the fact that many mysteries of this syndrome still remain undisclosed, and therefore, for the time being, we have no option but to live with it.  

"However, the children with their very special ways give us enough impulse to share their lives.  It is a further mystery of this syndrome that the affected children render it easy for us to love them.  A dominating factor in the care of such children is that they understand us and we understand them.  Their appearance and the sparkle in their eyes make it easy to love them.  Daily care for them and working with them gives us grownups strength, enabling us to learn the special treatment required, thus furthering our own development.  

"To live with them, to love them and to learn from them are the rudimentary principles of our work."  

Thank you,

Jenn Seney

 

 

 

DONATE

To This Fundraiser

$12,577

MONEY RAISED
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  • Erin

     

  • Bill and Alice Tansey

    $50

  • Sue Rothfuss

    $25

  • Sally Funk

    $50

  • Kelly, Ryan, Suzanne & Brian O'Neil

    $50

  • Carol Hacker

     

  • The McCues

    $100

  • Caitlin & James

    $100

  • Mesesian Family

    $100

  • Maureen White

    $50

  • Andrea Bartick

    $50

  • Kathryn Goodfellow

    $75

  • Frazer Family

    $100

  • david glynn

    $50

  • Farley

    $250

  • The Epstein/Kaplan Family

    $250

  • Pat & Christina Dodge

    $100

  • Jack & Kathy Ahern

    $52

  • Mary Quigley

    $125

  • Allegretti Family

    $75

  • Ken and Joy Foraste

    $50

  • Marginot Family

    $1,000

  • Kelley Parker-Hunt

     

  • The Browns

    $250

  • Kristin Hartnett

     

  • Bert Lynch

    $25

  • Janet Anderson

    $50

  • Sammon Family

    $50

  • Davin Maskell

    $25

  • The O'Deas

     

  • Maribeth Cannon

    $100

  • The Sobol Family

     

  • Lauren Brennan

    $25

  • Karen McCarthy

    $150

  • Maglione Famile

    $50

  • Tim & Carolyn Grimes

    $500

  • Jayne Surro

     

  • Griffin Family

     

  • Ed & Kathy

    $200

  • Anne Doucet

    $25

  • Anonymous

     

  • Jennifer Follett

    $50

  • susan leary

    $100

  • Maureen Gibbons

     

  • The Everett Family

    $100

  • The Grodsky Family

     

  • Maureen Barnowski

     

  • Bart Earley

     

  • Jeannine Valle

     

  • Martinek Family

     

  • Robitaille Family

     

  • Eileen Plunkett

    $100

  • Bill & Linda McKenna

    $50

  • Julie & Lee Andrade

    $100

  • Russ & Jen Moyer

    $100

  • The Nassa Family

    $100

  • Kathleen McCarthy

     

  • Jon & Mary Poor

     

  • Go Beth & Jenn!! -- Annemarie

     

  • Benjamin Wallace

    $100

  • Caitlin Whitehead

    $100

  • Desmarais Family

    $25

  • Maloney Family

     

  • Danielle Dowd

    $25

  • Craig

    $175

  • Susie Sanford

     

  • Carroll Family

    $50

  • Bonzey Family

     

  • Donna Citino

     

  • Ken, Deanna, Conor and Evan

    $50

  • Mary DelPizzo

    $50

  • Kristen and Dan Fox

    $50

  • Rachelle De saint phalle

     

  • The McElwains

    $50

  • Otto Johnson

    $25

  • Nora, Evelyn & Ellen Connolly

    $50

  • Connie Noonan

    $50

  • Stephen & Kate Wolseley

    $100

  • Virginia Rush

     

  • Laurie McCarthy

     

  • Peter & Jenni McCarthy

    $100

  • Ferullo Family

     

  • Patrick Noonan

    $50

  • Karen

    $25

  • Rob & Christel Maloney

    $50

  • Anonymous

    $100

  • Faith

     

  • Guydan Family

     

  • Sadulsky Family

     

  • Grace Cameron

     

  • YOU GO GIRLS!!!

    $100

  • Shannon and Tim Dolan

    $50

  • Amesbury Siegfrieds

    $100

  • Patricia Hurley

    $100

  • Cathy Rowan

    $100

  • E.G. Languzzi

    $25

  • Cash Family

    $150

  • Mark and Mairi

    $50

  • Heather and the kids McCarthy

    $100

  • brittany hardiman

    $50

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63% Raised of $20,000 Goal

Fundraise for this Campaign

The Team: $87,637 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Tracy Freeman

Amount Raised

$14,371

 

144% Raised of $10,000 Goal

Fundraiser Title

Jenn Seney

Amount Raised

$12,577

 

63% Raised of $20,000 Goal

Fundraiser Title

Andrés Cosano Molleja

Amount Raised

$10,537

 

105% Raised of $10,000 Goal

Fundraiser Title

Mark Lazzara

Amount Raised

$10,374

 

104% Raised of $10,000 Goal

Fundraiser Title

Kate Riley

Amount Raised

$9,761

 

115% Raised of $8,500 Goal

Fundraiser Title

Beth Herrmann

Amount Raised

$8,540

 

100% Raised of $8,500 Goal

Fundraiser Title

Andrew Caligiuri

Amount Raised

$8,520

 

100% Raised of $8,500 Goal

Fundraiser Title

Krissy Nowell

Amount Raised

$8,249

 

82% Raised of $10,000 Goal

Donor Comments

brittany hardiman

brittany hardiman

DONATION: $50

2 months ago

Heather and the kids McCarthy

Heather and the kids McCarthy

DONATION: $100

2 months ago

Mark and Mairi

Mark and Mairi

DONATION: $50

2 months ago

Cash Family

Cash Family

DONATION: $150

2 months ago

E.G. Languzzi

E.G. Languzzi

DONATION: $25

2 months ago

Cathy Rowan

Cathy Rowan

DONATION: $100

Go Abby's Army! 2 months ago

Patricia Hurley

Patricia Hurley

DONATION: $100

2 months ago

Amesbury Siegfrieds

Amesbury Siegfrieds

DONATION: $100

Go Jenn! 2 months ago

Shannon and Tim Dolan

Shannon and Tim Dolan

DONATION: $50

You've got this Jen! You're such an inspiration! 2 months ago

YOU GO GIRLS!!!

YOU GO GIRLS!!!

DONATION: $100

2 months ago