Lunch with your Favorite Disney Characters!
February 08, 2017
BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS
ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS
EVENT: 2017 Boston Marathon
EVENT DATE: Apr 17, 2017
On April 17, I will be running the Boston Marathon in honor of my son Aidan, and all others who struggle with Rett Syndrome. Aidan is a remarkable 3 year old boy who has beat the odds. Aidan is one of only a handful of boys who is living with Rett Syndrome. He spent the first year of his life fighting for his life. He was intubated thru numerous battles with pneumonia, RSV, and unspecified respiratory decline. He fought as hard as he possibly could to stay with us and he did it with a smile on his face and a twinkle in his eye. My husband Michael and I have decided one way to fight for Aidan is to raise money for research, with the hope of some day reversing Rett. Please consider supporting our cause as the funds will benefit research for Rett Syndrome. You can donate online or you can mail a check to me @127 RIchard Road Stoughton Ma, 02072. Please make your check payable to the Rett Syndrome Association of Massachusetts (RSAM). Please remember all donations are tax deductible.
RETT SYNDROME ASSN OF MASSACHUSETTS wrote -
Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!
Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.
Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome! For more information about RSAM, please visit our website at www.rettsyndromemass.org