Skip to content
shannonlinford's profile image - click for profile

Shannon Linford's Fundraiser:

Shannon Linford - 2017 Race to Beat Pots 5k

Shannon's Photo

BENEFITING: Dysautonomia International

EVENT: 2017 Race to Beat Pots 5k

EVENT DATE: Jun 18, 2017

Shannon Linford

THE STORY:

There are a few unchanging truths about me as a human being:

  1. I love Stephen Colbert
  2. Yes, I want to see a picture of your golden retriever puppy, did you really have to ask?
  3. I hate exercise

Here’s the catch about me and exercise, though: I’ll do it for a good reason. Usually, that reason is to get my doctors off my back.I have a really good new reason though. In 10 days, I'm going to walk and raise money for my all time favorite charity, Dysautonomia International.


YES. I’m willing to walk a mile in the middle of June for them, because here are some of the things they’ve done for me:

  • They provided me with information about dysautonomia and POTS, teaching me what my previous doctors could not
  • They connected me with my cardiologist (one of the top POTS experts in the world)
  • They provided doctors with powerful education seminars and tools to give them the information they need to accurately diagnose and treat dysautonomia
  • They introduced me to hundreds of people and made me feel so much less alone in this disorder that went undiagnosed for 10 years
  • They provided me with the best support system I could imagine (love y’all)
  • They empowered me to be a stronger self-advocate not only in my doctors’ offices but with my own government
  • They gave me opportunities to volunteer and give back to my community
  • They fund tons of research studies
  • They gave me opportunities to participate IN those research studies

SO HERE’S WHERE *YOU* COME IN.


Dysautonomia and POTS are so, so common but barely have any recognition or funding.


In the United States, an estimated 1 to 3 million Americans have POTS. By comparison, 400,000 people in the United States live with Multiple Sclerosis, and 1 million have Parkinson’s. Nearly everyone is familiar with MS and Parkinson's—as we should be!I want POTS to have the same recognition and funding as MS, as Parkinson's. I want every disorder that affects and take so much from so many to have adequate funding for research.


I want it so badly that I’m willing to do what I hate most in the world—


Walking.


In the middle of June.


*


So, will you sponsor me?


I know a mile doesn’t seem like much, but I currently do about 15 minutes of cardio every day on my recumbent bike—and walking a mile will be a huge challenge for me.


One of my cardiologists told me, "You will never enjoy exercise, your body was designed to hate it." I suffer from excruciating back pain when I go walking in addition to tachycardia, sweating, joint pain, weird tingling sensations and general grumpiness. (Tell me you wouldn't be grumpy if everything in your body hurt.) But the statement this makes: that I'm doing what I can, that I'm on my way to recovery every day, and helping Dysautonomia International in the process? Let's do it, man.


It would mean the world to me if you could spare a couple of dollars for Dysautonomia International—I volunteer what I can to this amazing organization that changes lives, and if you could help us continue what we do with a donation—I would appreciate it so much


*


I realize this was a bit long. But that’s a fourth fundamental truth about me—I have difficulties being concise.Thanks, y’all.<3

DONATE

To This Fundraiser

$570

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Shannon Linford

    $30

  • The Herbert Family

    $25

  • Lisa Miller Hut

    $30

  • Anonymous

    $50

  • Anonymous

    $50

  • Carole Warburton

    $25

  • Paula

    $25

  • Anonymous

    $25

  • Keith B

    $50

  • Uncle José

    $50

  • Mindy McAllister

    $50

  • Kay

    $25

  • Susan Emmett

    $10

  • Heather Chamberlain

    $25

  • Andrea Evans

    $100

  •  
  •  
  •  

Donor Comments

Andrea Evans

Andrea Evans

DONATION: $100

You go, girl! 5 days ago

Heather Chamberlain

Heather Chamberlain

DONATION: $25

5 days ago

Susan Emmett

Susan Emmett

DONATION: $10

6 days ago

Kay

Kay

DONATION: $25

You are brave to tell you story and challenge yourself in multiple ways. 6 days ago

Mindy McAllister

Mindy McAllister

DONATION: $50

for my potsie, Lindsey! 6 days ago

Uncle José

Uncle José

DONATION: $50

1 week ago

Keith B

Keith B

DONATION: $50

1 week ago

Anonymous

ANONYMOUS

DONATION: $25

1 week ago

Paula

Paula

DONATION: $25

1 week ago

Carole Warburton

Carole Warburton

DONATION: $25

You are an inspiration to so many. 1 week ago