Rain won’t stop our super squash Crew!
October 28, 2017
Synovial Sarcoma? What?! I didn't know about it either. But in 2008, I found out this was my diagnosis. A rare, difficult to treat cancer with a high chance of reoccurence. Very few studies done, which meant little research into finding optimal, successful treatment plans. It is most treatable in adolescents. But I was 28.
I was told: DO NOT read anything online. When I heard those words, I knew it was bad. But I researched it anyway (just as some of you are doing now ;) ). Well, my surgery in August 2008 was successful with all negative margins and after much thought I opted out of chemo. When you hear 'maybe it will increase your life expectancy by 12.5% and it is very toxic and controversial' , you really need to think it through. It was not an easy decision, but it felt right. I had 1 baby already and went on to have 2 more. That was my focus.
Fast forward 9.5 years later, and I am still focusing on the LIFE I WANT TO LIVE and not a life the cancer will dictate to me. I have been quite blessed compared to the numerous others with the same diagnosis. It is not an easy road: I have a few appointments a year and at least one test (usually the CT Scan - which as some of you know, has radiation).
Wondering why I am not checked out of the Cancer Centre yet? I have pesky little lung nodules for the last 6 years which won't go away.... they are tiny, but they change and a few new ones join the warm lung party every year or so. Can't rule out cancer just yet, but my team of Doctors at the Ottawa Hospital are optimistic and the best there is - I am known as being super positive, and I hear that helps! I am healthy otherwise and managing my life as best as I can!
I really have had 1 consistent Doctor the whole time: Dr. J. Werier. He is an amazing surgeon and he has helped us as a family so much with all the time he takes discussing the path forward, possibilities and listening to all my little thoughts/concerns. And today, October 5th, he asked me to run the Rattle Me Bones race this year - how could I say no?! Google him too while you are at it. He has done some amazing things for kids too.
I raise awareness and money mostly for childhood cancer because I was inspired from my daughter's journey and the friends we met along the way. I will never stop that. NOW, I want to do something for my own JOURNEY! But the good thing, is this race benefits CHEO too! What do you say, will you join me? This FALL, let's SQUASH Sarcoma together. This soft tissue cancer needs more research so the stuff we find on the internet will be much more positive and inspiring for those with a new diagnosis.