Meet Bryce Allyn Holmes - my 8 year old nephew who loves kittens! He is in second grade and an active Cub Scout. Bryce enjoys reading books, making Lego inventions, playing soccer and swimming.
Bryce was diagnosed with NF-1 as an infant and bilateral optic pathway gliomas at age 6. He has just completed over two years of chemotherapy which has stabilized both his vision and the gliomas.
Bryce takes on each day with inspiring enthusiasm, love and a thirst for knowledge!
We are thankful for organizations like the Children's Tumor Foundation as well as the team of doctors at Children's Hospital in Boston who are working dilligently to help children and families with NF.
Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.
NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution.
The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.
There is currently no effective treatments nor a cure, but you can help!
Please support our NF Endurance Team as we run the 2016 TCS New York City Marathon to end NF through research .
Please click on the DONATE button to contribute what you can on my behalf for the NF Endurance Team. Every little bit helps support families like mine who are living with NF.
Thank you so much!!