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Team Lily :

Organized by: Jr. Roth

Jr.'s Photo
Jr.'s Photo
Jr.'s Photo
 

Thank you all
September 09, 2016

Our family has been blessed by all of you, our friends, our medical team, and by God.  We have completed her surgries and she has been doing See More

EVENT DATE Sep 09, 2016

THE STORY:

Lily is our second child and she was born on March 19, 2014. My daughter was born with a very rare skin disorder called Congenital Melanocytic Nevi also known as CMN. She had what would be considered the GIANT TYPE It's so rare that there are only 600 reported case around the world. Lily has two which makes here extremely unique. She has a large Nevis on her face and she has what is called a Cape which covers most of her back. We are beginning surgery for Lily Oct 2014 and we have located the top doctors on the planet to be in charge of Lily's care. My family is in need of your financial help. Any size donation is helpful. Lily will need multiple surgeries over the next few years all which are located in CHICAGO.  Lily will first get skin expasion on her forehead and on her Back. The Doctor will put expanders in her body around her Giant Nevi and every 10 days we will have to inject the expanders with more saline to force her skin to stretch.  After approximatly 3 months then we go back to the Hospital in Chicago and they remove her expanders and then begin to replace the Nevus by cutting out the area and replacing it with the newly stretched Nevus free skin.  Then there is a 4 month period of healing.  soon after, this process will be repeated until they are done.  BETWEEN 10 day stays at the hospital multiple times a year, and her surgeries, travel and needed time off of work your donation would be not only helpful it could be life saving and life changing.

DONATE

To This Fundraiser

$31,713

 

63% Raised of $50,000 Goal

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  • Melissa and Michael Delguidice

    $100

  • Customers of Bay Gardens

    $500

  • Cannarelli Family @ Bay Gardens

    $500

  • Long Beach Middle School Denim For a Cause

    $144

  • The Zaleski Family

    $100

  • Danny and Eileen O'Brien

    $200

  • Finn Zuehlke

    $20

  • Dean spitaleri

    $100

  • Rose Gagatch

    $100

  • Lori Quinn

    $230

  • Anonymous

    $100

  • Anonymous

    $20

  • Pamela Pintar

    $20

  • kenny matthews

    $40

  • Anonymous

    $50

  • Kathleen Rodriguez

    $100

  • Sevdiyar and Wahedi family

    $50

  • The Nolan Family

    $100

  • Anonymous

    $50

  • Christine Federico VonGonten

    $25

  • The Conza Famly

    $50

  • Love * Laugh * Healing * Little Angel

    $100

  • Manuel

     

  • Anonymous

    $40

  • Anonymous

    $25

  • Charlotte Serrano

    $50

  • Silvano e Marcella

    $10

  • The Gallo Family

    $20

  • Pattie and Derrick Grieco

    $50

  • Anonymous

    $100

  • The Bonventre Family

    $50

  • Local family

    $10

  • Shelley

    $20

  • Sinclair Family

    $30

  • The Lamprechts

    $100

  • Nicol Willis

    $25

  • Ron & Maggie Corwin

    $50

  • Ernie & Robyn Ruberto

    $100

  • Chris and Laura Marshak

    $25

  • Dawn Carlino

    $10

  • Jane Brown

    $100

  • James And Matthew Raynor

    $100

  • Chris and Bonnie Berdan

    $50

  • Donna Jeanne

    $10

  • KIm & Charlie Dwyer

    $100

  • Michelle Brandi-Moodt

    $25

  • Dana King

     

  • Madeleine Gagatch

    $100

  • Sheila Alarcon

    $25

  • Anonymous

    $23

  • Anonymous

    $50

  • Annette Carpenter(Heather P.'s Grandma

    $50

  • Gerry Murgatroyd & Susan Mavruk

    $100

  • Anonymous

     

  • Linda Giordano

    $1,000

  • Anonymous

    $25

  • john knabl

    $50

  • Kenneth Miller

    $100

  • Vinny & Pat Benedetto

    $25

  • Fran and Joe Lasker

    $100

  • Anonymous

     

  • Beth Sanders

    $30

  • Becky

    $20

  • The Paradise Family

    $100

  • M & M

    $100

  • Ken Miller

    $40

  • Melissa and Dian

     

  • Anonymous

    $10

  • Brian Cook

    $25

  • Rich Lamiroult and Shea Keating

    $100

  • Anonymous

    $10

  • Becky n Doug

    $25

  • Jill Robins

    $100

  • Kiernan Family

    $25

  • Colleen & Frank Smisek

    $100

  • Kiara

    $25

  • Tracy Reigle

    $25

  • Bruce and Catherine Moon

    $200

  • Garth, Jessica, Kylee and Avery Wallace

    $100

  • Jeff and Nancy Paradise

    $100

  • Anonymous

    $100

  • Hamilton and Zan

    $150

  • SCUFC U9 Boys Black

    $160

  • Terry, Jenn & Nick

    $100

  • Simon

    $50

  • Evan & Gabe Sansbury

    $50

  • Austin, Megan, and Rick Tarnawsky

    $150

  • James and Kim Corn

    $100

  • Anonymous

    $50

  • Anonymous

    $20

  • The Hynes Family

    $75

  • Nina

     

  • Eileen and Danny O'Brien

    $25

  • Karen S.

    $25

  • Michael Collins

    $10

  • Anonymous

    $25

  • Craig and Tricia

    $150

  • Elena

    $10

  • Johnny M Canales

    $46

  • Barbaras Heart Foundation

    $1,000

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Organized by

Jr. Roth

This is a direct to organizer fundraiser.

Donor Comments

Barbaras Heart Foundation

Barbaras Heart Foundation

DONATION: $1,000

2 months ago

Johnny M Canales

Johnny M Canales

DONATION: $46

7 months ago

Elena

Elena

DONATION: $10

Surgeries for little ones is something with which my family is very familiar. You've got this, Lily. â 7 months ago

Craig and Tricia

Craig and Tricia

DONATION: $150

Thank you for celebrating Zan's birthday with us! 10 months ago

Anonymous

ANONYMOUS

DONATION: $25

10 months ago

Michael Collins

Michael Collins

DONATION: $10

10 months ago

Karen S.

Karen S.

DONATION: $25

From my daughter to yours 10 months ago

Eileen and Danny O'Brien

Eileen and Danny O'Brien

DONATION: $25

Donated to celebrate the second Birthday of Elizabeth O'Brien to Lily! 12 months ago

Nina

Nina

God bless this little angel ð 1 year ago

The Hynes Family

The Hynes Family

DONATION: $75

God bless Lily. Our thoughts and prayers: Mike, Erin, Lily, Olivia, Ted, Sadie and Abigail 1 year ago

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