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Ginna Bock's Fundraiser:

Team Allie

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BENEFITING: KIDNEY KIDS INC

ORGANIZER: Alexander

Ginna Bock

THE STORY:

Alexander Kaufman wrote -

In early December 2009, Allie was diagnosed with Nephrotic Syndrome. Her kidneys are not processing the proteins in her body, instead protein "spills" into other spaces of her body (first her legs, belly and face). Allie has a form of Nephrotic Syndrome called Focal Segmental Glomerulosclerosis (FSGS) . http://www.nephcure.org/fsgs-facts.htm


What are current FSGS treatment methods?
Very few treatments are available for patients with FSGS. Most commonly patients are treated with steroid regimens, most of which have very harsh side effects. Some patients have shown to respond positively to immunosuppressive drugs as well as blood pressure drugs which have shown to lower the level of protein in the urine.

Approximately 5 out of every 100,000 children are diagnosed with Nephrotic Syndrome every year and 15 out of every 100,000 children are living with it today.

• For patients who respond positively to treatment, the relapse frequency is extremely high. 90% of children with Nephrotic Syndrome will respond to treatment; however, an estimated 75% will relapse.

• In 2006, 4584 children were hospitalized in the United States with a diagnosis of Nephrotic Syndrome at a rate of 17 cases per 10,000 hospitalized children.

The Kidney Kids website is: http://www.kidneykids.org/

The Team: $3,679 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Alexander Kaufman

Amount Raised

$3,659

 

122% Raised of$3,000 Goal

Fundraiser Title

Ginna Bock

Amount Raised

$20

Fundraiser Title

Karen Sine

Amount Raised

$0

Fundraiser Title

Lindsay Phillips

Amount Raised

$0

Fundraiser Title

David Kaufman

Amount Raised

$0

Fundraiser Title

Patricia Villeda

Amount Raised

$0

Fundraiser Title

Deni Wilcox

Amount Raised

$0

Donor Comments

Kaori

Kaori

DONATION: $20

9 years ago