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Sara Maher's Fundraiser:

The Marfan Foundation NYC Marathon 2016

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BENEFITING: The Marfan Foundation

ORGANIZER: The Marfan Foundation

EVENT: 2016 TCS NEW YORK CITY MARATHON

EVENT DATE: Nov 06, 2016

Sara Maher

THE STORY:

Hi Everyone,

In April 2016, at 22 months old, our youngest daughter, Talulla (Lulu or Lou), was diagnosed with Marfan Syndrome.

Marfan syndrome is a rare life-threatening genetic disorder that affects the body's connective tissue, most seriously the heart, as in Lulu's case.  Connective tissue helps to hold the body’s cells, organs, and tissues together and also helps to control how the body grows and develops. 

Naturally Lulu's diagnosis hit us hard, but we are so thankful to have detected it so early and to have a better understanding of our path ahead.  We have met a great group of doctors and with medication, monitoring and ongoing research we believe Lulu will have a long, happy life.

We truly feel this is our new mission in life and want to do everything possible to help The Marfan Foundation further their research, advocacy, and education to ensure Lulu, and others, are able to live healthy and fulfilled lives.

One of the ways we will be raising awareness for Marfan syndrome is by running in the 2016 New York City Marathon on behalf of The Marfan Foundation's Team Victory.

We are excited to play a small role in this cause and would love if you could help support us and the efforts of The Marfan Foundation by donating in Lulu’s honor in the link below.  Of course feel free to share the link as well.  Thank you so much and we hope to see some of you along the race!

Love,

Sara & Bryan

$35,670

MONEY RAISED
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  • The Prager Family

     

  • Ben K

    $25

  • Jenny & Jorge

     

  • Mark & Joyce Stevenson

     

  • Bob and Paula

    $250

  • Kathleen Thomas

     

  • Karen, Dennis and Ruby

    $54

  • Kiki (Kristina Rodriguez)

    $100

  • Dick & Maggie Orzechowski

    $50

  • Denise & Michael Deleray

    $500

  • Gigi and LJ

    $1,000

  • Ashley & Antoinne Harris

     

  • Samantha Marcone

    $30

  • Anonymous

     

  • The Jendras Family

    $100

  • The Macchio Family

     

  • The Trans

    $250

  • Nick & Daniela Gold

     

  • Kathy & Brandon Wenk

     

  • The Permenters

    $250

  • Jody & Joe Quirk

    $100

  • Jennifer Shue

    $25

  • Amy Walton

    $50

  • The Duquette Family

    $250

  • Regina and Bill Peters

    $75

  • Bernard & Jennifer Lopez

    $150

  • Kathy and Mike Daab

     

  • Fran Clarke

    $25

  • Jerome Posatko

    $50

  • TCBY

    $50

  • Kathy Huston and Jack Sunday

     

  • Dan and Madeleine Masterson

    $100

  • Damien & Rafi

    $200

  • Andie and JJ Figlin

    $100

  • The Napolitano Family

    $100

  • Anonymous

    $50

  • Grandma and Yeh Yeh

    $1,000

  • Jenn & Matt Allen

     

  • Juli and Patrick Corrigan

    $100

  • The Halsted Family

    $25

  • Howald Family

    $50

  • Antico Family

    $50

  • The Nader Family

    $500

  • Sue & Pete Doherty

     

  • Danielle Willett

    $100

  • Rosanne Lucarelli

    $100

  • Joanie and John Cook

     

  • The Conlons

    $50

  • Angela, Justin and Wyatt Day

    $50

  • Bryan Castellanos

    $100

  • Regazzi Family

     

  • Andrew and Rosanne Miranda

    $500

  • Joanne and Bill Orenberg

    $100

  • Mandy Agnetti

    $50

  • Tim Barnes

    $100

  • Paul and Kate Conn

     

  • The Fish Family

    $250

  • Kellen and Maria Carson

    $250

  • Amy and Daniel Davis (Langendorf)

    $50

  • The Logan Girls

    $250

  • Coreen and Donald Mayerhofer

     

  • Lucille & Kevin Robison

    $50

  • Michael & Melissa Conti

    $50

  • Elizabeth and Chuck Callahan

    $100

  • Sam Berrios

     

  • Eli & Tricia Barlow

    $100

  • Brady family

    $100

  • Scott and Vickie Beck

    $100

  • Madeleine Erbe

    $50

  • Robyn & Rich

    $25

  • The Gallaghers

    $250

  • Julie & St. John

    $200

  • Michael Macleod

    $100

  • Feathers (I -IV)

    $100

  • Paige, Parker, Emmett, and Bailey Donohue

    $100

  • Heather Leder

    $250

  • Stev Rothbloom

    $500

  • Shah Merabi

    $100

  • Danise Chui

    $25

  • The Weber Family

    $50

  • The Trott Family

    $100

  • DeBusschere Clan

    $200

  • Jen and Tim Sullivan

    $100

  • Lucinda and Myles Corson

     

  • Chris, Amanda , Maximus and Zoey Wood

    $100

  • Liz Hogan

    $50

  • Rachel Robbins

     

  • The Torre Family

    $100

  • Eileen Mulcahy Moore

    $50

  • Kevin mulcahy

     

  • Stephanie Holloway

    $50

  • Lisa Vendetti

     

  • Stacy Aloi

    $50

  • Tracie & Chris Fitzpatrick

    $50

  • Go Noles!

     

  • Lulu (herself)

    $450

  • Sam Chandoha

    $250

  • Eileen Meehan

    $200

  • Michael Fay

    $100

  • Eileen & Frank Weber

    $100

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102% Raised of $35,000 Goal

The Team: $77,170 TOTAL RAISED SO FAR

Fundraiser Title

Sara Maher

Amount Raised

$35,670

 

102% Raised of $35,000 Goal

Fundraiser Title

The Brothers Garrett

Amount Raised

$14,650

 

147% Raised of $10,000 Goal

Fundraiser Title

Hillary Sapanski

Amount Raised

$10,201

 

204% Raised of $5,000 Goal

Fundraiser Title

Ezra Jennings

Amount Raised

$6,288

 

126% Raised of $5,000 Goal

Fundraiser Title

Cara Brobst

Amount Raised

$5,401

 

108% Raised of $5,000 Goal

Fundraiser Title

Jon Gould

Amount Raised

$3,250

 

108% Raised of $3,000 Goal

Fundraiser Title

The Marfan Foundation

Amount Raised

$1,660

 

2% Raised of $75,000 Goal

Fundraiser Title

Lisa Lore

Amount Raised

$50

Donor Comments

Eileen & Frank Weber

Eileen & Frank Weber

DONATION: $100

2 years ago

Michael Fay

Michael Fay

DONATION: $100

Great race Bryan & Sara! 2 years ago

Eileen Meehan

Eileen Meehan

DONATION: $200

2 years ago

Sam Chandoha

Sam Chandoha

DONATION: $250

2 years ago

Lulu (herself)

Lulu (herself)

DONATION: $450

Just making sure we hit the final (final) target! 2 years ago

Go Noles!

Go Noles!

Lulu Rocks! 2 years ago

Tracie & Chris Fitzpatrick

Tracie & Chris Fitzpatrick

DONATION: $50

2 years ago

Stacy Aloi

Stacy Aloi

DONATION: $50

Go LULU!!!! 2 years ago

Lisa Vendetti

Lisa Vendetti

2 years ago

Stephanie Holloway

Stephanie Holloway

DONATION: $50

2 years ago