thevhlfamily's profile image - click for profile

VHL Family's Fundraiser:

VHL 5K Walk/Run

VHL's Photo
VHL's Photo

BENEFITING: VHL ALLIANCE

ORGANIZER: VHL ALLIANCE

EVENT: VHL 5K RUN and WALK

EVENT DATE: Sep 22, 2013

VHL Family

THE STORY:

VHL FAMILY ALLIANCE wrote -

BENEFITING: VHL FAMILY ALLIANCE

EVENT: VHL 5K RUN and WALK

EVENT DATE: SEP 22, 2013, 8:30 AM

WHERE: Gallup Park, 300 Fuller Rd, Ann Arbor, MI 
               (wheelchair accessible)

DEADLINE TO REGISTER: SEP 21, 2013

 

This is our 1st Annual VHL 5K Run to benefit the VHL Family Alliance to support research and patient education.

100% of all proceeds go directly to the VHL Family Alliance.

Please help us cure VHL, kidney cancer, and hereditary cancers. Children and families with VHL battle a series of tumors their entire lives. We are dedicated to improving diagnosis, treament, and quality of life for individuals and their families affected by von Hippel-Lindau disease and funding research to uncover a cure. Curing VHL brings us one step closer to curing many forms of cancer!

Mike Mott, John Mott, Molly and Nick Oosting, and Fran Mott all hope you can join our family walking for the VHL Family Alliance's Team.  It's easy to register. If you can not take part in this event with us, we sincerely hope that you will consider being a sponsor.

It is thought that approximately 10,000 people in the US have von Hippel-Lindau (VHL). This disorder is frequently unrecognized and misdiagnosed, resulting in an unnecessarily high rate of morbidity and mortality. VHL lesions can occur in the eyes (retinas), brain, endolymphatic sac (middle ear) spine, pancreas, adrenal glands, kidneys, and other organs. You can read more about this on the www.vhl.org website. The degree of VHL involvement can be very different for each person affected by it, even within the same family.

Every penny and prayer helps move us closer to that desperately needed cure. Your support can be a big part of this! The VHL Family Alliance is the only organization supporting research on VHL. VHL research is unlocking the secrets of cancer for everyone. Your participation and/or dollars will help people with other cancers too, as well as VHL. Please join Mike, Fran, John, Molly and Nick in this effort. WE THANK YOU SO MUCH!

DONATE

To This Fundraiser

$2,535

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • AUDREY HUME

    $50

  • Anonymous

    $25

  • Erin Gray

    $100

  • Keri & Eric

    $50

  • Nicole

    $75

  • Chris

    $100

  • Grace Damico

    $50

  • Pauly K.

    $50

  • Anonymous

    $100

  • Arlene

    $100

  • Josh & Kara

     

  • Dr Jim Montie

    $100

  • The Ministry of Silly Walks

    $75

  • more Monty Python

    $50

  • Steven B

    $50

  • Doak n Gail

    $50

  • Janet Hatch

    $225

  • Joe Shmoe

    $100

  • Anonymous

    $250

  • Emerson Timmons

    $50

  • Eleanor Dunn

    $125

  • Halonens

    $50

  • Brian Holmes

    $20

  • those who care off-line

     

  • David Ginsburg

    $100

  • A merry heart doeth good like a medicine

    $25

  • Helen Mack

    $50

  • Anonymous

    $100

  • Dallas & Sharon Dagenais

    $25

  • Gerard Mondoux

    $100

  • Alphonse & Delphine Mondoux

    $125

  •  
  •  
  •  

The Team: $20,760 TOTAL RAISED SO FAR

Fundraiser Title

Team Gahl Waller

Amount Raised

$4,555

Fundraiser Title

Patrice Kendall

Amount Raised

$3,200

 

160% Raised of$2,000 Goal

Fundraiser Title

Karen Ramsey

Amount Raised

$2,650

Fundraiser Title

VHL ALLIANCE

Amount Raised

$2,565

 

13% Raised of$20,000 Goal

Fundraiser Title

VHL Family

Amount Raised

$2,535

Fundraiser Title

Gayle Greene

Amount Raised

$2,110

Fundraiser Title

Jane McMahon Romanoff

Amount Raised

$1,000

 

100% Raised of$1,000 Goal

Fundraiser Title

Robert Kramer

Amount Raised

$500

Donor Comments

Alphonse & Delphine Mondoux

Alphonse & Delphine Mondoux

DONATION: $125

6 years ago

Gerard Mondoux

Gerard Mondoux

DONATION: $100

6 years ago

Dallas & Sharon Dagenais

Dallas & Sharon Dagenais

DONATION: $25

6 years ago

Anonymous

ANONYMOUS

DONATION: $100

In honor of Fran Mott 6 years ago

Helen Mack

Helen Mack

DONATION: $50

6 years ago

A merry heart doeth good like a medicine

A merry heart doeth good like a medicine

DONATION: $25

6 years ago

David Ginsburg

David Ginsburg

DONATION: $100

6 years ago

those who care off-line

those who care off-line

Hoping they find a cure for VHL: Mary, Walt, Helen, Mary G., Florence, David 6 years ago

Brian Holmes

Brian Holmes

DONATION: $20

6 years ago

Halonens

Halonens

DONATION: $50

6 years ago