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Cherie Johnson's Fundraiser:

Wake Up Narcolepsy 2014 Boston Marathon $100,000 Goal

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BENEFITING: WAKE UP NARCOLEPSY INC

ORGANIZER: WAKE UP NARCOLEPSY INC

EVENT: Boston Marathon 2014

EVENT DATE: Apr 21, 2014

Cherie Johnson

THE STORY:

Cherie Johnson

Oro Valley, AZ  

Assoc. Director, Xyrem Distribution & Patient Affairs, Jazz Pharmaceuticals

My fundraising goal: $5,000

As you may know, Jazz Pharmaceuticals produces the narcolepsy medication Xyrem. At Jazz, I work with our pharmacy partner on the Xyrem Success Program.  I have worked on Xyrem for over 15 years and have an active role in helping create the services that benefit narcolepsy sufferers.  It’s my honor and privilege to be able to raise funds to benefit Wake Up Narcolepsy and am hoping that my friends, family, former and current colleagues, and running groups that I participate in will help me be able to raise funds for this misunderstood and rare sleep disorder. 

I first heard of the WUNners a few years ago when I met Monica Gow at a Narcolepsy Network conference in Las Vegas. At that time, I was hoping to complete my first marathon, so joining the team and supporting people with narcolepsy – both at Jazz and now as a WUNner – brings me full circle.

I myself am living with a rare disorder, polymyositis, as well as asthma and other autoimmune diseases. I was given a pretty grim prognosis many years ago, and although have been in remission for many years, I got out of shape and overweight. Back in January of 2010, I joined a local boot camp in Tucson, where I learned to run. My first fitness test mile run was equally grim – 18:06 – meaning I pretty much walked most of it. But with perseverance and hard work, I got faster and shed weight – a total of 50 lbs of body fat!

In July of 2010, I completed my first race – a 5-miler. Since then, I have completed well over 30 races, of which 8 were half-marathons, and 2 full-marathons – Tucson 2012 and New York City 2013. I hope to finish Boston in under 5:15. I also became a certified running coach through Road Runners Club of America, coaching with Fleet Feet stores for the past few months and also part of the Race Guards team. It’s such a thrill to encourage other new runners!

As a native Minnesotan, my favorite race was Grandma’s Half-Marathon in Duluth, where I was able to see friends and family. The NYC Marathon this past November was my toughest race, as I battled through plantar fasciitis. I didn’t hit my goal, but I finished and enjoyed each moment of the race! My personal best was a 10K race in Mount Lemmon near Tucson in April 2013, where I placed first in my age group.   

Running is a pure joy for me, and it means so much more to me when I can give back to others in the process, especially for the narcolepsy community that I have worked with all these years.  It’s an honor to be a WUNner for Boston 2014!  

Thank you for your generous support!

 

$6,840

MONEY RAISED
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  • JWi

    $20

  • Josh Delbridge

    $20

  • Cathy Gendreau

    $50

  • Haley Johnson

    $40

  • Karine Fleming

    $75

  • Norene Daniels

    $100

  • Todd & Judy Merry Christmas!

    $100

  • Jennine Klasing

     

  • Anonymous

    $50

  • Anand

     

  • Chris & Kerri Michels

    $50

  • Dave Hirsch

    $100

  • Art Fregoso

    $100

  • Tara Tsagouris

    $50

  • Dave Parker

    $100

  • Ben Park

    $100

  • Michelle Plaveczky

    $50

  • Linda & Garth Brocking

    $100

  • Julie Rhee

    $50

  • Jeff Cohen

    $50

  • Jim Trah

    $300

  • Bruce Cozadd

    $500

  • Kristen Hawthorne

    $40

  • Betty Tran

    $250

  • Monique Lambring

    $25

  • Mike Sargent

    $50

  • Shaun Rosenberg

    $100

  • Mikie Potestio

    $100

  • Philip Thrower

    $50

  • Terry Vernon SDS Pharmacy

     

  • Dawn, Mike, Spencer and Ella Grace Jones

    $500

  • Anonymous

    $50

  • Caroline Howard

    $100

  • Janelle Beeson

    $100

  • Aileen Baquiran

     

  • Christy Wood

     

  • Anonymous

    $50

  • Bradley C. Daniels

     

  • Cindy Walker

    $50

  • Wendy Olson

    $20

  • B

    $200

  • Anne Champsaur

     

  • Luly Almeida

    $100

  • Barrie O'Donnell

    $500

  • Jami Hudak and family

    $300

  • Heather McGaughey

    $500

  • Christine Style

    $50

  • Bob Grossman

    $100

  • Ashley Williams

    $50

  • Lori

    $100

  • Gina Ford

     

  • Allan Connell

    $100

  • Heather Clark

    $100

  • Stephanie Harris

    $50

  • Marissa Green

     

  • Mark & Michelle Hemingway

    $25

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137% Raised of $5,000 Goal

The Team: $84,734 TOTAL RAISED SO FAR

Fundraiser Title

David Gow

Amount Raised

$28,566

 

108% Raised of $26,500 Goal

Fundraiser Title

Ernie Freedman

Amount Raised

$17,593

 

176% Raised of $10,000 Goal

Fundraiser Title

Cherie Johnson

Amount Raised

$6,840

 

137% Raised of $5,000 Goal

Fundraiser Title

Katie Goode

Amount Raised

$5,804

 

116% Raised of $5,000 Goal

Fundraiser Title

Justin Ferguson

Amount Raised

$5,070

 

101% Raised of $5,000 Goal

Fundraiser Title

Stephen Smith

Amount Raised

$5,000

 

100% Raised of $5,000 Goal

Fundraiser Title

Lalita Bumpen

Amount Raised

$4,833

 

97% Raised of $5,000 Goal

Fundraiser Title

Alysia Steinmann

Amount Raised

$3,875

 

78% Raised of $5,000 Goal

Donor Comments

Mark & Michelle Hemingway

Mark & Michelle Hemingway

DONATION: $25

Thank you, Team WUN!! 4 years ago

Marissa Green

Marissa Green

Way to go Cherie! So proud of all you've done to make this happen! 4 years ago

Stephanie Harris

Stephanie Harris

DONATION: $50

4 years ago

Heather Clark

Heather Clark

DONATION: $100

4 years ago

Allan Connell

Allan Connell

DONATION: $100

4 years ago

Gina Ford

Gina Ford

4 years ago

Lori

Lori

DONATION: $100

4 years ago

Ashley Williams

Ashley Williams

DONATION: $50

So proud of you Cherie! 4 years ago

Bob Grossman

Bob Grossman

DONATION: $100

4 years ago

Christine Style

Christine Style

DONATION: $50

You are a role model for overcoming adversity. Have a wonderful time in Boston! 4 years ago