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Jonathan Clark's Fundraiser:

A 1/2 Ironman for FSHD

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What a week!
April 01, 2016

In one week I have surpassed half of my goal... a goal that is just a number. I plan on raising far more than the 2730 I proposed. Since I am  See more

BENEFITING: Chris Carrino Foundation for Fshd

EVENT DATE: Jun 19, 2016

Jonathan Clark

THE STORY:

In life there is one thing that is certain, we never stop dreaming and setting goals.

I know this for certain because in recent years I have set a lot of goals and fortunately met most of them. My next dream is to complete an Ironman, a race that challenges the body and mind to its limits.

To reach that goal – I need to take my first step, The Ironman 70.3 on June 19th in Syracuse 

At half the distance of an Ironman, it is still a great challenge and a goal in its own right.

It is a 1.2 mile swim followed by a 56 mile bike ride followed by a 13.1 mile run (half marathon)

But I will meet this goal.

My friend Chris Carrino has a goal. Chris, the radio voice of the Brooklyn Nets has a goal to find a cure and treatment for the disease that challenges him every day.

Facioscapulohumeral muscular dystrophy (FSHD) FSHD is a form of muscular dystrophy that causes progressive muscle wasting and weakness. The disease initially affects the muscles of the face (facio), shoulder (scapulo), and upper arms (humeral).

The degeneration of muscle can also spread to the back, pelvis and legs. Although FSHD is now the most common form of muscular dystrophy, FSHD research has been dramatically under funded by major muscular dystrophy organizations and the National Institutes of Health for decades.

The Chris Carrino Foundation for FSHD is the only organization in the New York area, and only one of three in the nation, specifically focused on FSHD. And I want to help Chris and I want your help.

Please consider donating and if you can’t do that, please watch this video recently featured on Yahoo Sports! and pass it along

Relentless voice: The fight of Chris Carrino: http://yhoo.it/22w5sgT

Thank You

Jonathan

'One Life, One Chance'

DONATE

To This Fundraiser

$3,875

MONEY RAISED
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  • JAMES BURROWS

    $50

  • Kelly Giacobbe family of Nyack

     

  • Alex DiGioia

     

  • Michael Wallace

    $100

  • Fran Schneidau

    $50

  • Chris Maget

    $25

  • Tim Capstraw

    $100

  • Wayne Cabot

     

  • Gus & Us

    $100

  • Roxanne

    $50

  • Tom Kaminski

    $50

  • Vickie Allen

    $100

  • Martin Untrojb

    $50

  • Scott Herman

    $250

  • The Harding Family

    $25

  • Bill Tynan

    $75

  • Tanya Hansen

     

  • Tim Scheld

    $200

  • Jerry and Janet Fenton

     

  • ben mevorach

    $50

  • Marc Rayfield

    $100

  • Carol DeFrancisco

    $25

  • Martinelli Family

    $100

  • Uncle Pete

    $50

  • Lambro Family

    $25

  • Theresa Carrino

    $100

  • Frank Iemmiti

     

  • Craig Allen

    $100

  • Mom & Dad

    $100

  • Debbie Rodriguez

    $50

  • Jenn Donohue

    $100

  • Anonymous

    $100

  • Tom Dwyer

    $50

  • Carol and Marty

    $100

  • Cinque Family

    $25

  • Keisha Glenn-Hutton

    $50

  • The Calcaterras

    $50

  • Adams family

    $50

  • Marisa Wayne

    $50

  • John Durney

    $100

  • Grandma Leone

     

  • The Botto Family

    $50

  • Paul Murnane

     

  • The Haskells

    $100

  • Kelly Waldron Deal

    $25

  • Libbie Werlau/Glen Botto

     

  • The Scheld Family

     

  • Brad Heller

     

  • Lyman

    $100

  • Steve & Jeanne Scott

    $50

  • Crys Quimby

    $100

  • Laura Cala

     

  • CHRIS RAUCH

     

  • Melissa Raff

    $25

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143% Raised of $2,703 Goal

Fundraise for this Campaign

The Team: $3,875 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Melissa Raff

Melissa Raff

DONATION: $25

2 years ago

CHRIS RAUCH

CHRIS RAUCH

2 years ago

Laura Cala

Laura Cala

Happy (belated) Birthday JC! And Good Luck! 2 years ago

Crys Quimby

Crys Quimby

DONATION: $100

Go, JC! And best to Chris. 2 years ago

Steve & Jeanne Scott

Steve & Jeanne Scott

DONATION: $50

Go get 'em, JC! Great cause! 2 years ago

Lyman

Lyman

DONATION: $100

2 years ago

Brad Heller

Brad Heller

2 years ago

The Scheld Family

The Scheld Family

2 years ago

Libbie Werlau/Glen Botto

Libbie Werlau/Glen Botto

2 years ago

Kelly Waldron Deal

Kelly Waldron Deal

DONATION: $25

2 years ago