A Angels Cry
Organized by: A Andrews
I'm at Sharps memorial in San Diego rm#683
November 09, 2016
So my story is a bitter-sweet picture of endurance, strength and choices even my kids have made through our toughest struggles. I keep blacking out (passing out) it keeps me going into the ER over & over again. After being misdiagnosed for years my doctor ran a test & it came back positive for posterior ortho static tachycardia syndrome disease.
I also have Ankylosing spondylitis in the Rheumatoid auto immune disease family another devastating blow. My body attacks my spine, joints & tissue my kids had to learn how take care of me. They give me my shots & everything. The doctors told me "I'm so sorry but it's going to be MAINTENANCE for the rest of your life.
The next surgery was to fix chronic sinus issues & my broken nose. (My nose was broken because one of my black outs)
I had pulersey when the docs did the scan there was a nodule on my thyroid it was cancer. The surgeon did a total thyroid removal. I was exhausted. The kids were scared. All this stuff happing to there mom. I cried for days. On top of that we had to move from Texas June 24th to California 4th of July with my neck wide open.
Xrays of my hip found moderate degeneration. Until it's severe it's not covered & I stay in severe pain until it gets to be bone on bone. I need a hip replacement period.
I had to have the nerves burned in my neck from my C4 to my C7 due to bulging. Burning the nerves hurt like you wouldn't believe.
Oct 3rd I got off the plane made it home & then passed out. They admitted me to the hospital saying unspecified heart condition. My poor kids dealing with just one thing after another after another. I had heart surgery on Jan 6th & making it through such a rough surgery. My kids said, "Mommy we are just grateful you made it through it & alive."
With no time to even get my thoughts together I had a hysterectomy on March 23rd There's a suspicion of cancer which is why it was so fast. The doctor saw something during surgery that looked suspicious on top of the ovaries but she removed that too.Unanswered whys scare us the most.
On May 27th I had another emergency surgery & a 2 1/2 day stay at the hospital. My jaw popped out of socket again. 12 screws & 4 hours of surgery.
On June 30th I had to have another emergency surgery on my jaw it dislocated again so Doctor Berger decided to do a permanent surgery. I watched the fireworks with my son through a hospital window. I broke down.
Another devastating blow emergency jaw surgery on the other side Nov 6th 8screws rubber bands shaved the bone put in a disc & added a pin to hold my jaw together. I'm getting tired really tired.
Please help I can't do this alone,
Superwoman is down & I use to be able to do it all but know I come humbly asking for your help. There is a laundry list of things needed but here are a few. There are several pieces of medical equipment. Help with transportation & gas. My special diet I must follow. Also making my home & truck accessible so I can live a good life.
Im so young & all this is overwhelming but I am trying to be strong for my kids...I'm tired of feeling alone.
Honestly could you afford all this mentally much less financially so just imagine if this was you or your spouse or your kids. What would you do? How much would you sacrifice?
We need your help ASAP
Thanks for your time reading my cry & to you who I have helped I wish I could have helped you more & to anyone who helps me Im grateful forever!