Skip to content

Activism for Albinism

Organized by: Natalie Devora

Natalie's Photo

THE STORY:

We all seek to find ourselves, to see ourselves reflected in another. Skin tone, hair color and texture, along with features aid us in understanding we are part of a family, part of a community. I was born with albinism, a genetic condition resulting in little to no pigment in the hair, skin and eyes. I am also African American. While my family spans the spectrum of color, there is no one who looks like me. This November I will travel to Dar es Salaam Tanzania to attend the first Pan African Albinism Conference sponsored by Under The Same Sun, a Canadian organization committed to advocacy, education and human rights of People with albinism within Tanzania. I am honored to be part of the global albinism discourse. I am seeking your support to travel to Tanzania for the conference. Additionally, your support will help to cover costs enabling me tovisit one or more residential centers for children with albinism. These schools are a safe haven for students who are at risk of being attacked within their communities. Children are frequently brought to the centers as this is the only way a parent can ensure their safety. I will also travel to Kenya to meet with other individuals with albinism. Albinism occurs in every culture. In the United States the ratio is 1 per 18,000. In Tanzania the ratio is 1 per 1,400. In many African countries PWA's (people with albinism) are frequently ostracized by their families and communities. Many live in fear of being attacked and murdered as the body parts of PWA are believed to bring good luck. Since 2000 seventy three adults and children with albinism have been killed and nearly an equal number have been severely injured. This trip is deeply personal to me. For many African Americans traveling to Africa is a longed for dream, a way to connect to a land where our ancestors came from. For me, it is even more so. For the first time I will gather with others with albinism throughout the African continent along with individuals from other countries. I will have community with those who have the shared experience of living with a visual impairment, of navigating the world as non pigmented within a culture of brown. There will be workshops on advocacy and human rights. There will be news about breakthroughs in albinism research. There will be great acceptance and celebration as we have intrinsic understanding of the multitudes of challenges faced as a person with albinism. Your support will enable me to contribute to this groundbreaking conference. Should my fundraising exceed its goal, the proceeds will be donated to organizations serving people with albinism. My heart swells with gratitude. I thank you

$944

 

16% Raised of $6,000 Goal

  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Anonymous

    $100

  • Lahn-Schroeder family

    $50

  • MSA

    $100

  • Laura Davis

    $250

  • Karen Young

    $200

  • Bunny Pie

    $50

  • Leo Henton

    $44

  • MSA

    $150

  •  
  •  
  •  
Organized by

Natalie Devora

This is a direct to organizer fundraiser.

Donor Comments

MSA

MSA

DONATION: $150

Love you. 2 years ago

Leo Henton

Leo Henton

DONATION: $44

For further success on individual, group, friend, national and international level. 2 years ago

Bunny Pie

Bunny Pie

DONATION: $50

I wish it could be more... 2 years ago

Karen Young

Karen Young

DONATION: $200

I am proud to know you Natalie. You are an amazing woman and we are lucky that you were in our lives at a critical point. We would love to hear about what you learn . 2 years ago

Laura Davis

Laura Davis

DONATION: $250

To my dear old friend. It's been an honor to witness your journey. You deserve this incredible opportunity. 2 years ago

MSA

MSA

DONATION: $100

Love! 2 years ago

Lahn-Schroeder family

Lahn-Schroeder family

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

2 years ago

Report this page — Let Us Know if you think this page is breaking the law or the CrowdRise Terms