ACT NOW! SUPPORT THE WALK FOR THE LYMPHEDEMA TREATMENT ACT!
Organized by: Lymphedema Advocacy Group Board
Act Now for LTA! Together We Can Pass The Lymphedema Treatment Act!
Update: We DID it!! 600 miles walked in two weeks! In case you meant to contribute, and just haven't had time yet it's never too late! This Crowdrise site will be inactive shortly but you can still donate through our general fundraising site at:
If you would feel more comfortable donating by check, that's just fine! You may make your check out to: The Lymphedema Advocacy Group. Our address is: PO Box 1682, Carrboro, NC 27510.If you are still reading, here was our story for our 600 mile walk!
If you are still reading, here's the story of our walk:
This Valentine's Day, we board members of the Lymphedema Advocacy Group are ‘showing our love’ for The Lymphedema Treatment Act by pledging to walk over 600 miles in two weeks! Our walk is nationwide, with each of us committing to as many miles as we can from February 14-28. Please show your support for the Lymphedema Treatment Act and our amazing team of walkers by donating today!
Our all-volunteer, grassroots Lymphedema Advocacy Group has been working tirelessly toward the passage of the Lymphedema Treatment Act. Each of us has a personal connection to lymphedema and its oftentimes devastating impact on the lives of those affected and their families. For some, it is their child who draws them to the cause, like Dylan or Sophie (both pictured). For others, there is a connection through their work in the lymphedema community or perhaps through their own battle with lymphedema.
The Lymphedema Treatment Act is a federal bill that aims to provide coverage for the necessary garments and compression supplies used to treat the condition. Between 3 and 5 million Americans suffer from lymphedema. Many are cancer survivors -- others are not. The prognosis for poorly treated lymphedema is terrible and includes complications like cellulitis, elephantiasis, and even death. The cost of caring for complications and disability far exceeds the cost of proper preventative care.
The Lymphedema Treatment Act is a bill for prevention, proper treatment, and cost savings.
Soon, our bill will be re-introduced into the new Congress. We believe there is a real opportunity for it to be passed within the next two years -- especially if we have access to government affairs experts. To put it bluntly, expert help is not cheap, but having carefully selected professionals in Washington working in concert with us could be priceless.
Fundraising for a 501(c)(4) charity such as ours is challenging. Owing to the nature of our work (involving legislation), donations are not tax deductible. Rest assured, we are approaching industry stakeholders (manufacturers) for funds to support the passage of the bill but we still need your help! Please give what you can and together we can pass The Lymphedema Treatment Act!
Our board members include: Heather Ferguson, Elaine Eigeman, Julie Hanson, Michael Cannon, Amber Best, Pat Egan, Judy Woodward, Bruce Carroll, Nicole Stout, Sherilyn Bell, Sarah Bramblette, Jill Ryan, Becky Sharp, Lois Tiemann, Elizabeth Baker, Patti Graybeal, Jennifer Hovatter, Adrien Mackenzie, and Kyle Weatherly. All are proud walkers and donors!
You may read more about lymphedema and The Lymphedema Treatment Act on our website at: http://lymphedematreatmentact.org/