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Acute Lymphocytic Leukemia

Organized by: James Winberry

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March 02, 2016

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THE STORY:

Watching your child grow and move forward through developmental milestones—learning to sit, to crawl, to take the first tottering step—is a joyful process for any parent. How frightening, then, to watch your child suddenly seem to “grow backwards.” That is what we experienced when our two-year-old son Alijah stopped walking. He just started crawling again.He would go for four or five days crawling with his foot up in the air like it was hurting. Then he’d walk for a few days then go back to crawling. Sometimes his right ankle hurt, sometimes his left, sometimes it was his wrist. We thought something might have happened at daycare.But that turned out not to be so. Soon, Alijah started running a high fever at night and we took our son to the family’s regular pediatrician. After repeated visits, with tests and x-rays coming back negative, the pediatrician referred Alijah to a rheumatologist, suspecting his mysterious pains might be a sign of rheumatoid arthritis. Once again scans and tests showed no problems. Alijah definitely did not have RA. The next day, doctors diagnosed Alijah with acute lymphocytic leukemia (ALL) after performing a bone marrow biopsy and finding leukemia cells in his marrow. A long journey, a special boy . The cost is too much for us to bare.Anything you can help us with we will be forever apreciated.

 

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James Winberry

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