Amy's Recovery from Brain Surgery
Organized by: Sofia Wahaj
Here’s the good news: Amy finally got the surgery she has needed for years, and she is recovering very well!
Here’s the bad news: Brain surgery ain’t cheap!
We could use a bit more help from our friends to help Amy move to the next phase of her life without a hole in her finances to match the new hole in her head. She could not get this done with an in-network neurosurgeon, and the initial $9K raised has quickly evaporated. The cost of surgery and recurring visits is steep.
For folks wanting more detail, here is what has transpired over the last couple years since we initially launched this fundraiser.
About two years ago, we requested some help for Amy. She needed brain surgery, and without it, she was looking at a heavily medicated and sedentary life, lacking simple pleasures most of us take for granted. Aside from being in constant pain, she had to contend with seizures, loss of balance, light sensitivity, food restrictions, and a complete disruption of her sleep cycles.
We had a specific doctor, specific fundraising goals, and what appeared to be a path forward. Suffice it to say, things did not go as planned. Considering only a handful of surgeons in the US even consider removing pineal cysts, it was very discouraging to lose Plan A.
Because things got a little crazy in the search for a new doctor, we hit the pause button on the fundraising activities. It seemed inappropriate asking for help with so much uncertainty around the situation.
Amy eventually found Dr. Barkhoudarian. He put her through the paces, carefully vetting whether removing the cyst was the right thing to do. When he saw the size of the cyst and assessed it was severely impeding the flow of her cerebrospinal fluid, it was a no-brainer (worst PUN ever?) Amy had a successful surgery on Oct. 27th, 2017, and she is tracking nicely through her recovery.
Amy has endured more than I can imagine. We’re hoping she will enjoy newly attained well-being without the struggle of an overwhelming financial burden. A normal life sounds wonderful.