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AIMEE VALENCIA's Fundraiser:

Fragile X AWARENESS

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AIMEE VALENCIA

THE STORY:

July is National Fragile X Awareness Month, an extension of Fragile X Awareness Day (July 22) which is officially recognized by Congress to increase awareness and advocacy for Fragile X.

Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe. Individulas with FXS may also have challenging behavior due to anxiety, sensory processing issues (overload from noise, lights and tactile sensitivity), limited communication skills, desire to escape from an activity/request and difficulty with transitions. To learn more about FXS and other Fragile X-associated Disorders (FXDs) visit: fxd.fragilex.org

Please help us raise awareness and consider donating to this cause. Your donation will go to the National Fragile X Foundation (NFXF). It will help fund research and will help families receive the support and education that they need to live happier, healthier lives.

The mission of the NFXF is to provide emotional and educational support, to create public and professional awareness and fund research towards effective treatments and a cure for Fragile X. They do this by advocating at the federal governement level which has helped sustain over $30m in funding for basic and clinical research as well as funding smaller grants.

Fragile X Awareness also means getting laws passed that will help ensure a better future for our children. ABLE act was passed by US legislators last December due in large part to the efforts of volunteer advocates of the National Fragile X Foundation's Fragile X Advocacy Day. Eight years in the making, this act allows families to set up saving accounts without penalty for disability-related expenses, ensuring a better future for their children. There's still more work to do!

Thank you for considering donating to this cause which has touched so many families including mine.

~For my son, Colin

 

 

What is the NFXF Let ‘Em Know 5K?

The NFXF Let ‘Em Know 5K is part of July’s National Fragile X Awareness Month “Let ‘Em Know” campaign!

The 5K is a virtual run/walk to help raise awareness and funds for Fragile X from anywhere in the world! Ask anyone who’s participated: This is one of the easiest ways to raise awareness for Fragile X, so why not give it a shot?

It isn’t about how fast you are. It’s about what you can do to raise awareness and “Let ’Em Know” about Fragile X.

Register Today!

  1. Click on "JOIN this Event" 
  2. Select "REGISTER for the Event"
  3. Complete the forms and you're ready to go!

And we have prizes! Read on….

 

What does “virtual run/walk” mean?

Because there is no single organized event, you can run or walk (bike, hop or skate, whatever you like!) the 3.1 miles (5K) all at once or over the course of a week or the entire month, anywhere, anytime!  You do not have to report or verify your miles, it’s all on the honor system.

What we do want is for you to share your awareness success –  while you are out, take pictures with your LEK Race shirt and share it with us through social media! (see below).

Only folks who register to participate will receive a custom-designed, collectible athletic race shirt and NFXF Let ’Em Know 5K race bib.  Donors to your fundraising page, will not receive a shirt unless they register themselves.

 

Not interested in running, walking or strolling?

We've got you covered! You can create a personal fundraising page for no cost and still be entered in the prize drawings! Just click on "Join This Event" and then select "Start a Fundraiser". 

Please note: Only run/walk participants who register will receive the official race shirt and bib.

 

Prize Drawings!

We have two Grand Prizes this year. One for the most money raised by an individual and one for the individual who has greatest number of donors to their personal page. Each winner will receive a $250 Amazon Gift Card!  

For the first time this year we also have individual incentives as you reach the $100, $250, $500 and $1000 levels. Prizes include custom LEK15 keychain, NFXF Koozies, car magnet and Tervis Tumbler water bottle.  Prizes will be automatically mailed each week starting in July. 

Each individual personal fundraising page under the NFXF “Let ’Em Know” event on Crowdrise from now through July 31 will automatically be eligible to win.

Be sure to see “Tips” below for ways to increase your efforts.

Click Here for National Fragile X Foundation Award Details.
 

Get started today… the sooner, the better!

  1. Register* by June 12th to ensure you receive a NFXF Let ’Em Know 5K race shirt and bib # by choosing “Join this Event" and "Register for the Event."
  2. Create your personal Fundraising Page by choosing “Start a Fundraiser”
  3. Share your personal Fundraising page with your personal network of family, friends, colleauges, etc.
  4. Put on your official NFXF “Let ‘em Know” race shirt, lace up and hit the road on your own virtual 5k. Have friends and family join you for support and to create more awareness than ever before.
  5. Take and post pictures to share them on Facebook, Twitter and Instagram using #NFXFLetEmKnow. Don’t forget to send photos to NFXF and your local Community Support Network.

*Note: Participants must register by June 12 to guarantee their shirt will arrive in the mail by July 1. Limited sizes are available, so please order today!

 

TIPS

  • Set a goal! A $100 goal is as simple as ten $10 donations from friends! A $500 goal can be met with twenty-five $20 donations from friends!
  • Think big and encourage your family and friends to support your efforts!! You may even win a grand prize!!
  • Share your photos along with a fundraising update showing the progress toward reaching your goal!

Complete your run or walk by July 31, 2015.

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Note:

Please check with your doctor regarding your ability to physically participate if you have not regularly exercised in the last 12 months prior to the NFXF Let ‘Em Know 5K. Your doctor will probably suggest there is no time like the present to start getting active!

But be smart, don’t stress and stay healthy—we want you running or walking for Fragile X for a long time to come! All donations to your personal fundraising page benefiting the NFXF on the Crowdrise website are tax-deductible!

$5,310

MONEY RAISED
  •  
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  • Aimee Valencia

    $20

  • Anonymous

    $250

  • Anonymous

    $10

  • Scotty Louie

    $15

  • I love Colin

    $25

  • Anonymous

    $100

  • Anonymous

     

  • Tim & El ❤️

    $300

  • Andrew Laquihon

    $50

  • Noah and Ava

    $100

  • Anonymous

     

  • Makenna Lee

    $50

  • Raquel Afang

    $50

  • Sash, Jason & Evan

    $50

  • Zachary & Isla Aleman

    $100

  • Amelia Rae Diaz

     

  • deVera clan (Arneil, Jaz, Mya, Jayda, Arya, JR, and baby

    $100

  • Alex, Janette, and Jeremy

    $50

  • Adrianne Alejo

    $40

  • Anonymous

    $25

  • Luci & Anna

    $50

  • SkyNette

    $500

  • Jean Choy

    $50

  • Carolyn and Joe

     

  • Gene & Evelyn Valencia

    $300

  • JoyBairdGaret

    $350

  • Anonymous

     

  • Nunez Fam

    $100

  • EllanEd

    $50

  • Ant and Roni Tan

     

  • Billy & letty

    $100

  • Abby, Waylon, Ayla & Talon

     

  • Roz and Matt

     

  • MSN-E

    $25

  • Rusty and Zeny Baluyot

    $100

  • Rey and Lilia Baraceros

    $100

  • Cher & Kate

    $50

  • Anonymous

    $100

  • Anonymous

     

  • Candee Cruz

    $50

  • Anonymous

    $10

  • Anonymous

     

  • NINONG & NINANG

     

  • Anonymous

     

  • Francis and Karen

    $100

  • Zarah

    $50

  • Eric and Jen

     

  • Leslie Dabi

     

  • Anonymous

     

  • Anonymous

     

  • Louis David

    $10

  • Tritasavit Family

     

  • Alysia Rood

    $50

  • Eva Aguillon

    $100

  • Ana Prado Ruiz

     

  • Samantha and Kimmy Laquihon

    $100

  • Bernadette Latonio

     

  • Ben & Paulita Amoroso

     

  • Ninong & Ninang E&N

    $100

  • Benjamin & Angelita Harris

    $100

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106% Raised of $5,000 Goal

The Team: $5,310 TOTAL RAISED SO FAR

Donor Comments

Benjamin & Angelita Harris

Benjamin & Angelita Harris

DONATION: $100

3 years ago

Ninong & Ninang E&N

Ninong & Ninang E&N

DONATION: $100

We love you Colin 3 years ago

Ben & Paulita Amoroso

Ben & Paulita Amoroso

3 years ago

Bernadette Latonio

Bernadette Latonio

3 years ago

Samantha and Kimmy Laquihon

Samantha and Kimmy Laquihon

DONATION: $100

We love you Colin❤️ 3 years ago

Ana Prado Ruiz

Ana Prado Ruiz

3 years ago

Eva Aguillon

Eva Aguillon

DONATION: $100

3 years ago

Alysia Rood

Alysia Rood

DONATION: $50

Keep up the great work!!! Good luck to you and your family!!!! 3 years ago

Tritasavit Family

Tritasavit Family

3 years ago

Louis David

Louis David

DONATION: $10

3 years ago