Hi Friends! Please join us for the 6th Annual Walk & Roll for PWS. This is an exciting year because you can support an exceptionally promising clinical trial of Oxytocin. This drug could drastically improve the lives of those living with PWS. Dr. Jennifer Miller needs our help to raise 1 million dollars to begin her Phase Two Trial. Oxytocin changed the lives of children living with PWS, for the short time they were enrolled in her Phase One trial. Please help us make the promise of oxytocin a reality for our children and all people living with PWS. (click here to Watch the Oxytocin Initiative video)
About PWS: Prader-Willi Syndrome (PWS) is a complex, life threatening medical disorder that affects the body’s hormone system; muscle strength; pain, sleep and temperature regulation; cognition and learning; behavior and appetite. For persons with PWS, the brain does not regulate emotions and appetite normally.Behavior problems are common, worsened by an unrelenting, overriding physiological drive to eat. Normal satiety, the feeling of fullness after eating, does not exist. Undiagnosed, unmanaged and without 24/7 supervision, Prader-Willi Syndrome leads to obesity-related illness and premature death. Prader-Willi Syndrome is one of the 10 most common syndromes seen in genetic clinics and the most common genetic cause of obesity. Although research has made great strides to increase our understanding of Prader-Willi Syndrome, there is curretnly no treatment to control or even reduce the insatiable appetite, no medication to treat all of the behavior and psychiatric symptoms. BUT - there is hope with additional research and clinical trials.