BENEFITING: Transverse Myelitis Association
EVENT DATE: Oct 06, 2013
It all started in May 5, 2005 when I complained to my Primary Physician about tingling and numbness on my left side, left foot dragging and not being able to keep my balance. I was referred to a neurologist and he ordered an MRI which came back normal an EMG. The result of the EMG was abnormal with a local lumbar root irritation. My neurologist then told me to do water exercises and said that should help. Well it did not help and after three years I went back because my symptoms got worse.
When I saw the neurologist again he ordered another MRI and this time it came back abnormal, there was a lesion in my spinal cord and he diagnosed me with Sjogrens Syndrome.
I was not comfortable with the diagnosis of Sjogrens Syndrome so I searched for a different neurologist and in 2009 I found Dr. Mikesell and he was determined to find out what the legion was in my spine. He referred me to a rheumatologist that did blood test and X-ray’s which revealed that I also have Degenerative Arthritis. Dr. Mikesell also ordered another MRI of the spine and a spinal tap. Once all the tests came back, I was diagnosed with Transverse Myelitis.
Transverse Myelitis is not just a Spinal Cord Disorder but a life changing experience.
BENEFITING: The Transverse Myelitis Association
The goal of the Illinois Walk-Run-N-Roll Campaign is to increase awareness and raise funds for research and programs for individuals suffering from Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica (NMO), Optic Neuritis (ON), Transverse Myelitis (TM) and Recurrent Transverse Myelitis, and their caregivers.
The first annual Illinois Walk-Run-N-Roll for the Transverse Myelitis Association (TMA) will begin with Registration from 10 to 11 a.m., followed by the Walk-Run-N-Roll and a Post-Walk Celebration. It will be held at beautiful McCollum Park, 6801 South Main Street, Downers Grove, IL. Proceeds will benefit TMA's research and service programs for people with TM, NMO, ON and ADEM.
We have reserved the large Picnic Pavilion which is adjacent to a 1.2 Mile Paved Path and a Playground with ADA- and CPSC-compliant play equipment. Major highways, including I-355, I-55, I-294 and I-88, are nearby.
Everyone is invited to register, donate and spread the word. Teams are now forming. For information, contact Nancy Dove at firstname.lastname@example.org or (312) 316-5262.