Skip to content
aliditullio's profile image - click for profile

Ali DiTullio's Fundraiser:

Alis Allies

Ali's Photo
 

Research: Stage 1 Success!
September 17, 2017

Recently, our research project in the Netherlands identified a “hit” on a drug that showed significant promise in improving Kleefstra Syndrome  See more
Ali DiTullio

THE STORY:

My name is Alessandra (Ali) DiTullio. I am 21 years old. I like music, swimming, spending time with my family & friends, and going to school. I was diagnosed with Kleefstra Syndrome (KS) when I was 8 years old. At that time, the geneticists knew of 9 other people with KS in the world. Talk about being special! Now there are about 300 of us. For me, KS causes severe mental retardation, extensive speech delays, low muscle tone, poor fine motor skills, vision impairment, and sleep disturbances. Some amazing advances are being made in the medical field and there is hope that there is a drug treatment for my intellectual disability. WOW! As you can imagine my family and I are super excited about this possibility. In order to do this, I am going to need a whole team of allies. Please consider donating to help fund research for this project and help me live the life I was meant to.

DONATE

To This Fundraiser

$52,775

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Chet & Terri Weber

    $100

  • FRED STANG

    $50

  • Chris Zahumensky

    $100

  • Gene DiTullio Pre Event

    $100

  • Gene DiTullio Pre Event Racing squares

    $100

  • The Roux's

    $100

  • Dan Leugers

    $50

  • Scott and Susan Smith

    $50

  • Peggy Freedman / Pre Event one split the pot and one pre event racing squar

    $25

  • Carolyn Lichter / Pre Event one split the pot & one Pre Event racing square

    $25

  • Jone Stewart / Pre Event racing square

    $20

  • Ament Family

    $20

  • The O'Leary's ( and Lucke) family

    $50

  • Paul and Linda Longville

    $100

  • Nancy and Darren Wiedman

    $20

  • Jeff Rieder

    $100

  • Nick and Karen Anzel

    $100

  • Ruth Cionci / Pre Events

    $25

  • Laurie Busch Pre Event

    $25

  • Summit Hospital Police Dept

    $150

  • Cathy Telscher Altimari

    $40

  • Frank and Aimee Hodges

    $25

  • Brooke Achtermann and Family

    $25

  • Tina Rieder

    $100

  • Mike & Karen Reynolds

    $25

  • Kelly and Adam Wallpe

    $40

  • Jamie Koetters

    $25

  • Chang Hammons and Joshua Nicewonder

     

  • Anonymous

    $100

  • Dominic Iannarino

    $100

  • David Giles

    $25

  • Sue DiTullio

    $50

  • Mike and Terri Dean

    $100

  • Mike Dean Pre Event Split the Pot

    $25

  • Ann Gerbus pre event

    $50

  • Jeanne and Frank Rieder

    $100

  • Alex and Beth DiTullio

    $50

  • Denise Ferri

    $25

  • Laurie Busch

    $90

  • Anonymous

    $300

  • Chad Armentrout and Family

    $100

  • Dave Mancino generously donated back his split the pot winnings!

    $850

  • The Elson Family

    $25

  • The Roos Family

    $100

  • The Roope family

    $25

  • Anonymous

    $200

  • Bill Zumvorde

    $50

  • Lisa and Jim Howarth

    $50

  • Jane Shappelle Miller

    $50

  • Anonymous

    $100

  • Karen Darwish

    $150

  • Kenneth & Brenda Yablonsky

    $50

  • Window Butler/Danny & Debi Brown

    $400

  • A Night at the Races

    $5,593

  • A Night at the Races - Silent Auction

    $1,410

  • Donated in memory of Carl Rieder

    $5,000

  • Donation made in memory of Carl Rieder

    $3,050

  • Mike and Susan Montgomery (In memory of Carl Rieder)

    $100

  • Judy Papania (In memory of Carl Rieder)

    $25

  • John and Linda DiTullio in memory of my father Carl Rieder

    $300

  • The Nicolls Family (In memory of Carl Rieder)

     

  • Tricia and Bud Fidrych (In memory of Carl Rieder)

    $100

  • Todd and Jenny Blincoe (In memory of Carl Rieder)

    $100

  • The O'Brien Family (In memory of Carl Rieder)

    $100

  • Elizabeth Knowles LaPlante (In memory of Carl Rieder)

    $100

  • Keith Renneker

    $100

  • Virginia Moser (In memory of Carl Rieder)

    $25

  • Sarah Gaskins (In memory of Carl Rieder)

    $15

  • Bonita Vetter (In memory of Carl Rieder)

    $20

  • Steve & Patty Cagney (In memory of Carl Rieder)

    $10

  • Beverly Snider (In memory of Carl Rieder)

    $25

  • Jud & Ginny Cagney (In memory of Carl Rieder)

    $10

  • Jenn Treft (In memory of Carl Rieder)

    $50

  • Ann Gerbus (In memory of Carl Rieder)

    $100

  • Janet Vennemeyer (In memory of Carl Rieder)

    $25

  • Lisa Herman (In memory of Carl Rieder)

    $20

  • Woody Sander Ford (In memory of Carl Rieder)

    $400

  • Debi McCrea (In memory of Carl Rieder)

    $35

  • Peggy & Mike Knowles

    $100

  • Phyllis and Bob Thompson

    $25

  • Anonymous

    $1,000

  • In memory of Carl Rieder - Let's find a treatment!

    $430

  • Laurie Busch in memory of my father Carl Rieder

    $150

  • Jeanne and Frank Rieder in memory of Carl Rieder

    $100

  • Tom & Jean Gahan in memory of Carl Rieder

    $25

  • Patricia Shorsch in memory of Carl Rieder

    $20

  • Tina Rieder in memory of Carl Rieder

    $100

  • Anonymous

    $5,000

  • Move this research forward

    $7,000

  • Phyllis Thompson

     

  • Doyle Phillips

    $25

  • Anonymous

    $9,217

  • John and Linda DiTullio

    $500

  • Dennis and Judy Witt

    $50

  • Connie and Mike Dusold

    $50

  • Peggy Knowles

    $1,000

  • Dave and Deborah Palmisano

    $100

  • Diane Yoakam

    $50

  • Tim and Shannon McClatchey

    $25

  • Joan Rieder

    $1,000

  •  
  •  
  •  
 

53% Raised of $100,000 Goal

Fundraise for this Campaign

The Team: $52,775 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Ali DiTullio

Amount Raised

$52,600

 

53% Raised of $100,000 Goal

Fundraiser Title

Laura Meiners

Amount Raised

$100

Fundraiser Title

Jason Michael

Amount Raised

$75

Donor Comments

Joan Rieder

Joan Rieder

DONATION: $1,000

4 months ago

Tim and Shannon McClatchey

Tim and Shannon McClatchey

DONATION: $25

5 months ago

Diane Yoakam

Diane Yoakam

DONATION: $50

5 months ago

Dave and Deborah Palmisano

Dave and Deborah Palmisano

DONATION: $100

In memory of Glennie Hancock, died January 2016 of ALS 5 months ago

Peggy Knowles

Peggy Knowles

DONATION: $1,000

Contributing on behalf of Linda & John DiTullio 5 months ago

Connie and Mike Dusold

Connie and Mike Dusold

DONATION: $50

5 months ago

Dennis and Judy Witt

Dennis and Judy Witt

DONATION: $50

Ali DiTullio 5 months ago

John and Linda DiTullio

John and Linda DiTullio

DONATION: $500

5 months ago

Anonymous

ANONYMOUS

DONATION: $9,217

It is so important to keep the research going. 6 months ago

Doyle Phillips

Doyle Phillips

DONATION: $25

8 months ago