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robin kirchgessner's Fundraiser:

The Alle Shea Project

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BENEFITING: Osteogenesis Imperfecta Foundation, Inc.

ORGANIZER: Jean

EVENT: George Eastman House Photo Finish 5K 2013

EVENT DATE: Oct 05, 2013

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THE STORY:

Jean Aurio wrote -

Alle Shea was born with Type II Osteogenesis Imperfecta, which is a genetic disorder characterized by bones that break easily, often from little to no apparent cause. Alle lived a miraculous 5 weeks before losing her battle with this disease.
The Alle Shea Project and OI Foundation raise awareness, research and support families with OI.

We are raising money for the OI Foundation.

The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support. The OI Foundation began in 1970 when a small group of parents from around the nation met in Chicago to discuss OI and its problems. At that time, they banded together to stimulate public and professional interest, support families and encourage research. Today, many of the people who serve on the board of directors and oversee the Foundation's operation have OI themselves or are parents of children with OI.

DONATE

To This Fundraiser

$155

MONEY RAISED
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  • Ken and Ann Knight

    $50

  • Cheryl & Mike Clark

    $25

  • GG Sparkes

    $25

  • sandy and kurt

    $25

  • Full Circle Attack Records

    $10

  • Jenna Giamartino

    $20

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Fundraise for this Campaign

The Team: $1,807 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Alison Branch

Amount Raised

$200

Fundraiser Title

susan rollinson

Amount Raised

$155

Fundraiser Title

robin kirchgessner

Amount Raised

$155

Fundraiser Title

Taylor Walker

Amount Raised

$135

Fundraiser Title

Danielle Spaker

Amount Raised

$100

Fundraiser Title

Emel Terzioglu

Amount Raised

$100

Fundraiser Title

Jean Aurio

Amount Raised

$85

 

9% Raised of $1,000 Goal

Fundraiser Title

The Mooney Family

Amount Raised

$75

Donor Comments

Jenna Giamartino

Jenna Giamartino

DONATION: $20

5 years ago

Full Circle Attack Records

Full Circle Attack Records

DONATION: $10

5 years ago

sandy and kurt

sandy and kurt

DONATION: $25

Go Robin Go! 5 years ago

GG Sparkes

GG Sparkes

DONATION: $25

5 years ago

Cheryl & Mike Clark

Cheryl & Mike Clark

DONATION: $25

5 years ago

Ken and Ann Knight

Ken and Ann Knight

DONATION: $50

5 years ago