BENEFITING: Epilepsy Foundation
EVENT DATE: May 06, 2012
Six-year-old Alannah Enfield was diagnosed with Epilepsy when she was just two years old. When she was four, she began taking guitar lessons with Jeremy through the Pittsburgh Music Academy, a Suzuki music school. After several months of lessons, Alannah's medication to control her seizures spawned a dangerous side-effect, Hyponatremia. During the course of changing medications to offset the Hyponatremia, Allanah's seizures became more and more frequent--up to 100 a day at its peak.
Needless to say, she had to stop her guitar lessons as the family and her doctors struggled to reduce her seizures. After several failed attempts at different meds, they had to resort to brain surgery. Based on studies funded by The Epilepsy Foundation, the surgeons were able to pin-point the cause of Alannah's Epilepsy--an area of malformed brain tissue in her right frontal lobe, which they removed.
The surgery was successful and Allanah has been seizure-free for over a year and will hopefully be off all medications soon! She resumed her guitar lessons and continues to be an incredible student.
The money raised will be donated in conjunction with Jeremy's commitment to run the Pittsburgh Half Marathon on May 6th and will be given in the name and memory of Nathaniel Stiffler, a music-lover, great friend, and kind soul who passed away two years ago in a car accident. One of Nathaniel's favorite songs was Shimmer by Fuel, which inspires the name of this fundraiser.
A benefit concert featuring fantastic local Pittsburgh music will be held Sunday, April 22nd at 6:30pm at Sing Sing - Waterfront, Pgh. Please check out the facebook event for more information: