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All They Want for Christmas is a New Set of Teeth

Organized by: Denyse J Shimchick-Millitello

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THE STORY:

They are affected by a rare genetic condition known as Ectodermal Dysplasia: ( AEC) Ankyloblepharon Ectodermal Defects Cleft Lip/Palate Syndrome. This condition affects their teeth hair skin nails sweat glands & more. Currently Dyllan (16 yrs) has no teeth, Danielle (15 yrs) has 18 atypical teeth that need surgically removed due to lack of enamel & adequate dentition & Delores (8 yrs) has 1 tooth & it has to be removed. They all require dentures & dental implants & the surgeries & sedation involved to have the implants placed (bone graphs jaw manipulation additional palate repairs etc). The implants are needed in addition to dentures b/c the gums & teeth are like soil & roots. Without roots, the soil erodes. Dental implants act as an artificial root within the gum to prevent the erosion of the jaw bone which is typical in Ecotdermal Dysplasias.

Finally after more than 5 years on the waiting list Dyllan Danielle & Delores have been approved for their dental care through the Dental Implant Treatment Program through the SIUE Dental School in Alton Il. The Dental School is able to give us a 20% discount on services/care provided through an agreement with the National Foundation for Ectodermal Dysplasia (NFED) of which we've been members of for nearly 35 years.

Dyllan Danielle & Delores have Illinois Medicaid as their Medical Provider. Our Physicians submitted letters of medical necessity to Medicaid for dentures & dental implants & unfortunately Medicaid will not cover the dental care they require. Due to being on a fixed income & our debt to income ratio we don not qualify for a loan to cover these expenses.

Dyllan will require sedation for portions of his care due to Epilepsy, Generalized Anxiety & being on the Autism Spectrum. The Dental School is unable to provide sedation. We'll have to travel from Alton to Chicago to the Maywood Clinic for the portions of his care that will require sedation.

Dyllan requires a 3D image to show his bone structure & measurements for the implant process. After being fitted for a conventional upper & lower denture the implant process can be started.

The projected cost for Dyllan's treatment plan include but are NOT LIMITED to the following:

$225: 3D Image
$1272: Conventional Upper & Lower Denture
$1200 x 10: Implants ($12,000)
$600 x 10: Nonstandard Posts ($6,000)
$19,497 NOT INCLUDING Clinic & Anestesia Charges, Transportation, Lodging & Meals for Dyllan & Myself

Danielle requires a 3D image to show her bone structure & measurements for the implant process. She has to have 18 teeth surgically removed. After being fitted for a conventional upper & lower denture the implant process can be started.

Danielle will require sedation for 18 teeth to be surgically removed & for portions of the implant process. We'll travel from Alton to the Maywood Clinic in Chicago for portions of her care requiring sedation as well.

The projected cost for Danielle's treatment plan include but are NOT LIMITED to the following:

$225: 3D Image
$5000: Surgical Removal of 18 Teeth
$1272: Conventional Upper & Lower Denture
$1200 x 10: Implants ($12,000)
$600 x 10: Nonstandard Posts ($6,000)
$24,497 NOT INCLUDING Clinic & Anestesia Charges, Transportation, Lodging & Meals for Danielle & Myself

Delores requires a 3D image to show her bone structure & measurements for the implant process. She has to have 1 tooth surgically removed. After being fitted for a conventional upper & lower denture the implant process can be started.

Delores will require sedation for 1 tooth to be surgically removed & for portions of the implant process. We'll travel from Alton to the Maywood Clinic in Chicago for portions of her care requiring sedation as well.

The projected cost for Delores' treatment plan include but are NOT LIMITED to the following:

$225: 3D Image
$500: Surgical Removal of 18 Teeth
$1272: Conventional Upper & Lower Denture
$1200 x 4: Implants ($4,800)
$600 x 4: Nonstandard Posts ($2,400)
$9,197 NOT INCLUDING Clinic & Anestesia Charges, Transportation, Lodging & Meals for Delores & Myself

If the event funds raised exceed the final cost of care excess funds will be donated to the National Foundation for Ectodermal Dysplasias Treatment Fund.

Thank you for your time & attention regarding this urgent neec for my family. We sincerely appreciate each & everyone of you who share this link & donate towards our need! Much Love & Blessings To All of You

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Organized by

Denyse J Shimchick-Millitello

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