BENEFITING: Amyotrophic Lateral Sclerosis Association
EVENT DATE: Mar 19, 2017
DAYS TO GO: 28
On March 17th The ALS Association Orange County Chapter will be participating in The Los Angeles Marathon, in an effort to raise awareness and funds for ALS research.
For the past 19 years we have selected a person diagnosed with ALS to be pushed the entire 26.2 miles, showing the world that ALS will not stop us from living and achieving the seemingly impossible.
This year's marathoner is Eryn Blythe. Eryn is 39 years old, and when she was 6 months pregnant with her second child, she began to notice slight weakness in her left hand. She first thought it was something benign and pregnancy related. Luckily, her doctors recognized some of the symptoms, and began their diagnosis. In March 2014, one month prior to her baby being born, she was asked to come in to see her OB the following day. While waiting for the doctor, all of the lights in the building went out except for the one spotlight in her exam room. Sitting there in the almost dark, with her husband at her side, in a cold hospital gown, she was told that her baby was healthy and strong, but that she would most likely not be there to see either of her children start school, let alone finish it.
Every 90 minutes someone is diagnosed with amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disorder. ALS, also known as Lou Gehrig's disease, Charcot's disease, and motor neuron disease (MND), attacks certain cells in the brain and spinal cord needed to keep our muscles moving. The senses, including hearing, sight, smell, taste, and touch, are not affected by ALS. Most people with ALS live 2-5 years after their first signs of disease. About 10% of people with ALS survive at least 10 years. This variable rate of disease progression makes prognosis difficult to predict and therapies challenging to develop.
Currently, there is only a single medicine for specifically treating ALS - riluzole. The drug, marketed by Sanofi-Aventis under the name Rilutek, extends survival by only about 2 to 3 months.
With your donation, you will not only support Eryn in this once in a life time activity, but you’ll also be helping to create a world without ALS. Every penny raised will go directly to research. Together we can take steps towards a cure.