ALS - Obstacles To A Cure
Organized by: Jeffrey Newdeck
EVENT DATE Oct 11, 2014
In May 2014, our good friend Jay Smith won a Popular Science Invention Award for the "Guitarwing" (see at www.guitarwing.com), celebrated his wife’s 37th birthday, went indoor skydiving to celebrate his oldest daughter’s 7th birthday, and was diagnosed with ALS.
ALS, or Lou Gehrig’s disease, is a rapidly progressive and ultimately fatal disease. ALS robs you of the ability to walk, talk, eat, drink, and breathe, while leaving your fully-functioning mind trapped in a rapidly failing body. There is no known cure, and the few treatment options that exist only extend life a short period of time, around 2-3 months. Death usually occurs 2-to-4 years from diagnosis.
Rather than letting this diagnosis crush his spirit, Jay, his wife Missy, and their two daughters Loghan and Peyton are fighting back - those who know them well would expect nothing less.
Through extensive research they've found that ALS is not an incurable disease - far from it, according to experts. However, it remains untreatable today because ALS research continues to be woefully underfunded. To continue the battle against ALS on behalf of everyone afflicted with this disease and everyone who loves them, Jay and Missy have setup the every90minutes foundation (www.every90minutes.org), commemorating the fact that every 90 minutes someone is diagnosed with ALS and someone else dies from it. Their foundation accepts donations that will be funneled directly to fund the most promising research in the world.
They are fighting all obstacles in their path toward a cure, but they need our help.
In that same spirit, to raise awareness and donations for every90minutes, I will be challenging myself to complete the Tough Mudder on October 11th, a 10-12 mile course filled with obstacles designed to test all-around strength, stamina, teamwork, and mental grit. A meager analogy for the obstacles standing before Jay and others afflicted with ALS, but hopefully enough to raise ALS awareness and inspire others to join in the battle against this horrible disease by raising awareness and donating to help fund the cure (go to www.every90minutes.org for more info and video testimonials, and forward the link to others!).
My goal is to raise $2,000. All donations will go directly to Jay's foundation, which funnels the funds directly to the top ALS researchers leading the charge to find a cure.
With your help we can eradicate this terrible disease.