BENEFITING: 90 Foundation
EVENT DATE: Apr 24, 2015
In May 2014, our good friend Jay Smith won a Popular Science Invention Award for the "Guitarwing" (see at www.guitarwing.com), celebrated his wife’s 37th birthday, went indoor skydiving to celebrate his oldest daughter’s 7th birthday, and was diagnosed with ALS.
Rather than letting this diagnosis crush his spirit, Jay, his wife Missy, and their two daughters Loghan and Peyton are fighting back - those who know them well would expect nothing less.
Through extensive research they've found that ALS is not an incurable disease - far from it. The reason it remains untreatable today is because ALS research continues to be woefully underfunded.
To continue the battle against ALS on behalf of everyone afflicted with this disease and everyone who loves them, Jay and Missy have setup the 90 Foundation (www.every90minutes.org), commemorating the fact that every 90 minutes someone is diagnosed with ALS and someone else dies from it. Their foundation accepts donations that will be funneled directly to fund the most promising research in the world.
They are fighting all obstacles in their path toward a cure, but they need our help.
In that same spirit, to raise awareness and donations for every90minutes, I will be challenging myself to complete the GoRuck Challenge on April 24th, a 15-20 mile challenge designed to test your physical and mental grit. A meager analogy for the obstacles standing before Jay and others afflicted with ALS, but hopefully enough to raise ALS awareness and inspire others to join in the battle against this horrible disease and help fund the cure (go to www.every90minutes.org for more info and video testimonials, and forward the link to others!).
My goal is to raise $500 by Friday. All donations will go directly to Jay's foundation, which directly funds the top ALS researchers leading the charge to find a cure.
With your help we can eradicate this terrible disease.