March 05, 2016
BENEFITING: The ALS Association Western Pennsylvania Chapter
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
My father James Marx was diagnosed five years ago with a sister diagnoses of ALS bulbar Palsey (very rare). With this diagnoses the paralyses begins in the "bulbar" brain stem region effecting the motornerons first. Shortly after his diagnoses he lost all ability to speak. Unfortunaly things have progressed and he now has ALS. His life has been darastically altered and the simple things he once could do he can no longer do. It is very difficult to see the man you look up to and has been so strong have these obstacles.
Although he is faced with these obstacles he is a fighter in every sense and continues to try to push barriers and impress us all! I am so proud and amazed! From the beginning he did not let his diagnoses stop him or change his infectious positive attitude! He will not give up and continues to fight!
I pray that one day we find a cure to this truly devastating disease! I want to help gain awareness of this disease so that one day we can find a way to fight, cure, or even better prevent ALS!
Thank you all for visiting my page and donating! It means more than you know for all fighting and all those who have fought!
The ALS Western Pennsylvania Chapter was founded in 1982 to serve the needs of those living with Amyotrophic Lateral Sclerosis (ALS) and their caregivers. Our Chapter provides services and support to persons living with ALS, caregivers, families, and healthcare providers in 31 counties in central and western Pennsylvania.
The ALS Western Pennsylvania Chapter has been involved with the Pittsburgh Marathon since 2014. This year we are a Silver Level Charity Sponsor. Our goal is to raise $20,000 that will be used for patient care and services in the 31 counties we serve. Help us reach our goal by donating today.