I'm dedicating my team to Ann Chodara, a dear friend and rare advocate. Her father was diagnosed from Creutzfeldt-Jakob Disease, a rare prion disease that affects 1 in 1 million peope. He passed away in January 2015, while Ann was in her third year of medical school. It was incredibly difficult for her and her family to watch him decline in the span of weeks with no clear answer until the days before he died. He was only 61 years old. His brother also died of CJD at the age of 48. Many are unaware that this terrible disease can be passed down through families in addition to contracting it through contaminated meat or instruments.
Please join me and Ann raise awareness and funding for diseases that are unknown to many but so critically important to those who are affected.
I'm dashing and raising awareness for RARE disease communities in honor of those who cannot and inspire hope in all. Please join me for the 2nd Annual Virtual Denim Dash!
The virtual Dash will be held on Saturday, March 19 through Sunday, March 27, 2016 and the Southern California Local Dash will take place on Wednesday, March 23, 2016 at the Global Genes headquarters in Aliso Viejo.
DENIM DASH 2016 NET PROCEEDS:
Net proceeds from both the Virtual Denim Dash 5k, and the Local Dash will go directly back to the Rare Disease Community through Global Genes' RARE Patient Impact Grant. That's what makes this Dash so different from others, the funds you raise through the Denim Dash go directly into a program that positively impacts the rare community!
Supporters from all over the world will run/walk/swim/bike or roll 3.1 miles to support the RARE Community. The DENIM Dash 5k for Rare Disease is virtual, so you have the flexibility to participate wherever, whenever is most convenient for you as long as you Dash anytime between March 19th-27th!
Once you register, you will receive a dash packet. Included in the packet will be:
· Dash T-Shirt (must register by 3/2/15 to receive t-shirt)
· Dash Bib & Safety Pins
· Medal (to the first 1,000 who register)
· Blue Denim Genes Ribbon to wear on your shirt
ALISO VIEJO, CALIFORNIA:
The second annual 5k Denim Local Dash takes place in Aliso Viejo, CA at the Global Genes headquarters. If you’re looking to have fun with your friends and family then dash to support the RARE community! The dash will start outside the Global Genes office and will continue around the local area.
Date: Wednesday, March 23, 2016 from 4:00 PM to 7:00 PM (PST)
Address: 28 Argonaut, Suite 150, Aliso Viejo, CA 9256
You can pick up your bid number and race T-Shirt the day of the race.
HOW TO REGISTER:
Register as an individual, create or join a team, or simply fundraise. It’s up to you!
Individual: You can register as an individual and let your friends and family know and they can donate to your fundraising page.
Team: Join an existing team or create your own and invite your friends and family to join. Whats the best thing about a virtual dash? Uncle John can join your team even if he lives 3,000 miles away!
Simply Fundraise: Don’t want to dash, but you still want to participate? No problem! Simply create a fundraising page and get started!
TIPS AND IDEAS FOR YOUR VIRTUAL DASH:
Use different apps like Google Maps, Map My Run, Nike Running, etc., to determine a 3.1 mile route near you to bike, hike, row, paddle, swim or whatever you like! You can do this in a group, with a friend or by yourself. It’s up to you how will you DASH? You can share your 5k DASH with your friends, family, and other members of the Rare Disease Community through Facebook, Twitter, and Instagram by using #Dasher2016! Can’t DASH 3.1 miles in one day? No problem! You can take your time and complete the 5K during the week. All you have to do is register!
Maximize your fundraising impact! Ask your friends and family to sponsor your DASH. Ask them to donate per mile or to donate a flat amount for the total 5k. Please also keep in mind that there’s no set amount for sponsorship, so your friends and family can sponsor you at any level that’s feasible for them. You can also choose to pay more than the registration fee as an extra donation!
Please join us in this incredible opportunity to raise awareness for those you are dashing for, all while supporting the Rare Disease Community as a whole through raising funds for Global Genes' RARE Patient Impact Grant.
Be sure to share your experience by using #Dasher2016 on any social media platform!