Hi Everyone, Thank you for visiting my page. Those of you who know me, know two things about me. One that I love running and two that I am a private duty pediatric nurse.
March 19th 2017 I am bringing those two things together. I will be running the NYC Half Marathon with the EB Research Partnership team.
Running for the EBRP team hits close to home for me as the little boy I work with has EB. Some of you have met him but I am sure almost all of you have heard of him. He is an awesome 9 year old boy who has Recessive dystrophic epidermolysis bullosa the worst variation of this disease. This affects not only his skin but his eyes as well as the moist mucus membranes of the GI tract.
EB is a genetic disorder that causes the body to not produce enough collagen that holds the layers of the skin together. This results in painful blisters and skin tears. Something as simple as scratching an itch or rubbing your eye can cause a major blister or tear resulting in days of pain.
Please take a moment to donate and help me reach my fundraising goal and help find a cure for EB. No amount is too small and everything is appreciated.
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CR Impact Points
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