Amanda Ward via Crowdrise
August 29, 2015
BENEFITING: Lupus Foundation of America, Inc.
EVENT: Lupus Water Balloon Battle
EVENT DATE: Sep 19, 2015
My names Amanda Ward I'm 22 years old and have been diagnosed with Tumid lupus in April. It's been a stuggle for me to adapt. I have to say this is the first summer I have not been outside and not gotten a tan! It all started when I was getting misquito like bumps that turned into red ring welts on my neck and spreading to my back. I was misdiganosed several times before diagnosed with tumid lupus. They thought bacaterial, lyme , all sorts of things. Finally after my third round of blood work and 3 biopsy's we figured it out. This also made alot of sense because i was always so fatigued and getting sick or having body aches.I started out on prendizone which made me a crazy nut and gain weight. After that I didnt want to go back on the steroids because of that and not to be immune if I ever needed it. By this time the sun was out and my "spots" were getting worse. Tumid lupus can become worse with uv rays.. even florescent lights can start a flare up. I went in every couple weeks for a while for steroid injections to get rid of the "spots" but within a week it would be back, and again the steroids... I was then put on plaqunill.. I am now on my second script from it and it is just starting to work for me! My spots are fading but im still discolored in areas! I have good and bad days. Some days getting out of bed is hell and other days im fine. I go from being so energetic( specially if you know me ) to being half dead sitting down feeling like a bus hit me. All i can do is Pray for a cure and that i dont ever get worse. I stay postive and live my life the best I can :D