BENEFITING: EASTER SEALS ALABAMA INC
EVENT DATE: Oct 15, 2016
Little Webb C. was born on May 21, 2012 at the Women and Infants Center at UAB in Birmingham, AL. He has two older brothers, Will, age 14 and Wade, age 10 his parents, Steven and Kara, his grandparents William and Fannie and Tom and Kathy. His parents had known before he was born that he had a heart defect known as Congenitally Corrected L-Transposition of the Great Arteries. During subsequent office visits with the pediatric cardiologist it was discovered that he would have to have a pacemaker implanted early in his life. He was four days old when he had a strenotomy to implant the pacemaker. He developed a staph infection known as MSSA in the incision and had to remain in the hospital for six weeks of antibiotic therapy. It was discovered during that time that he also had a moderate to large VSD (hole between the lower heart chambers) which required open heart surgery in order to close it. The doctors hoped that he would not have to have the surgery until he was 6 months old. During his hospital stay, complications with his breathing and feeding developed and he was on and off the ventilator, c-pap, nasal canula, and ng tube. Many and various diagnostic tests were done but results always came back as normal. He eventually progressed to the point of not having to have any oxygen support, being able to nurse, and taking supplemental bottles. He was finally able to go home on July 25 with plans to return at age 6 months for the surgery to close the VSD. He was home for two weeks and doing great until he began having breathing difficulties and had to be re-admitted to the hospital and put on nasal canula for oxygen support. Plans were made to go ahead with the VSD surgery but on August 31, while he was still waiting for surgery, he aspirated and went into cardiac arrest and was given CPR for seventy minutes. He was put on ECMO and cooling therapy to aid in protecting his brain from damage. He regained his heart function and was taken off ECMO after four days. Since it was quite a while before he was strong enough for the open heart surgery, pulmonary banding surgery was done as a temporary fix. A brain scan was done and he was moved to Children‘s Hospital of Alabama on September 19 for evaluation and treatment. After reviewing his brain scan, the doctors in the PICU at Children’s advised Steven and Kara that Webb had severe brain damage and would never show emotion, never walk or talk, would never know that his parents loved him or that he would be able to show his love and it would be better for him to be taken off everything that was helping him stay alive and “let him go comfortably”, but if the decision was made to keep him alive he would maybe have a few months at the most to live. They told them they (the doctors) would support any decision Steven and Kara made. Kara told them that was not her decision it was God’s decision and if He allowed Webb to live she would devote her life to making his life the best it could be. Since he was not able to come off the ventilator, on October 11, 2012 he had surgery for a tracheostomy, g-tube, and fundoplication. The doctors said that he needed a heart transplant but because of his brain damage he did not qualify for one. In December, 2012 Webb’s heart function began to improve to the point that the doctors were able to perform open heart surgery to close the VSD and remove the band from his pulmonary artery. His surgery was a success and he was able to come off the ventilator. In preparing to go home, Steven and Kara (and grandparents) had to take training for cleaning and replacing the trach and feeding him through the g-tube. He was able to go home on January 18, 2013. and On July 4, 2013 the trach was removed and in October, 2013 the g-tube was removed. In November 2013 he had surgery to correct the strabismus he had developed after his cardiac arrest. Due to lack of oxygen to his brain during the cardiac arrest and CPR he acquired brain damage which resulted in Cerebral Palsy. He has dystonia in his right arm and leg. Because of his brain damage he has never been able to crawl, or sit up or walk by himself. However; he is very alert and interactive with his family and friends; he understands everything that is spoken to him and he is able to speak a few words. He displays every range of emotion, especially happiness and love. He very much enjoys making people laugh. Needless to say he is a joy and a blessing to all his family, friends, and everyone who meets him. He receives physical, occupational, and speech therapy and has made amazing progress in his development. He will start attending a special needs school in Montgomery AL for a couple of days a week this fall. We will never give up on Webb and do all that we can to help him learn to sit, walk, talk, feed himself and aspire to be all that he can be! His Facebook page is “Pray for Webb”.
We encourage you to join our team, in support of Webb, to help benefit Easter Seals Central Alabama. Their CARE Project has provided Webb with some of the equipment needed to help make his struggles less a hurdle and more an achievement. Thank you.